I live near Wellington, New Zealand (originally from the UK) and I was diagnosed with ET JAK2+ on 24 Nov 2017 after 3 months of waiting to find out, my GP only referred me in August when my platelets hit 780 and 620 (still 650 2 months ago and don't have latest result yet). Looking back through my blood results (regular for high blood pressure) that I have now managed to get, I have had high platelets (over 500 and sometimes over 600) for over 5 years, but the GP hasn't ever told me or explained the relevance or done anything till now. I've been on the site reading posts and learning as much as I can for over a month now, so I feel like I know some of you already, but I wanted to wait for my diagnosis before posting for the first time
I have had bleeding complications from surgery at least 3 times even though my platelets aren't high enough to be associated with it, so have been screened for Von Willebrand which came back quite low, re-screening in January, if it's low again they will do more tests to see what type it is and if I've always had it or acquired it. Does anyone else have ET and Von Willebrand disease or Acquired Von Willebrand?