Hi everyone, my name is Christina. I found your forum 3 days ago and am very impressed at how helpful and supportive everyone is to each other... so I felt it time to properly introduce myself.
I'm 50 years of age and diagnosed 3 months ago with ET, and early stage MF. My platelets are 673 and I am currently being treated with aspirin therapy, folic acid and B12. My hematologist has referred me to an ET research hematologist at Columbia hospital in NYC I have an appointment set for next week. I'm hoping this specialist will be able to give me a clearer picture of what symptoms are connected to ET, my current status, treatment ideas and prognosis.
The question I want to pose is :What symptoms have you had? I'm trying to figure out what is related to the ET and what isn't
I've experienced a number of odd symptoms that seem unrelated, yet when viewing past conversation threads here it seems that my experience is similar
Dibilitating fatigue & brain fog (both improved a bit with aspirin)
Random hearing and vision issues
Random swelling of an ankle or just one finger
Gastrointestinal issues that seem to have improved since starting the aspirin
Numbness/tingling/cold sensitivity/joint stiffness in my feet and hands