I am an analytical chemist and work with DDT, solvents, endocrine disrupting chemicals, PAHs, pesticides, environmental pollutants, etc. as part of my job. I was recently diagnosed with ET JAK2+ and am on Hudrea 500mg/day. Platelets were 1.4 million, now 900 000. The haemotologist asked about my occupation, when I told him I am a chemist, he answered 'there is the cause of your ET'. I too am convinced there is a link between chemical exposure and ET/gene mutation. I live in South Africa so on top of occupational exposure there is also every day chemical pollution exposure via air and water pollution.
I am so glad to have found this site. The info here has been so helpful. My ET symptoms are leg and spine pain, dizziness, silent migraines, fatigue, brain fog, bruising, weight loss. Since being on HU I now also have sweating, restlessness, anxiety, insomnia, urinary tract burning sensation, brain fog+fatigue seem worse.
All I now know about ET I had to research myself. The doctors did not tell me that it was a MPN. I was just told 'you have ET'. Thank goodness for the internet and this site.