Results are in!

[Spanelmad]

Latest Guys visit last week was given all my results and it's definitely ET! no marsking going on just the seroneg arthritis rearing it's head.Allele burden was 16% in the biopsy but 26% in the blood sample.

Because of the neuropathy issues with Peg will be starting Angerlide when the platelets go over 550. Currently I've been off meds since May and my count is still at 407 so hoping godmother couple of months of watch and wait.

The diet overhaul has proved successful and were down 3 stone. All processed food cut , lots of fish,chicken and vegetables. Organic when I can.

[hunter5582]

Glad to hear that you have your results and a clear plan that you are comfortable with.

Wishing you success moving forward.

[RoundTheWorld]

Good to get some certainty. Hope you continue with the reasonable platelet levels. Very well done on the healthier diet!

[Spanelmad in reply to RoundTheWorld]

Yes the consultant and I were both convinced it would be PV we had already discussed drugs!!

[PhysAssist]

Hi Spanelmad,

I'm glad to hear you had good news.

I'll keep all my crossable body parts crossed for your continued good fortune!

Best,

PA

[Spanelmad in reply to PhysAssist]

Keep them crossed because it's normally 8 weeks in and everything goes to pot!!So here's hoping I get past the stumbling blocks,so far so good ,echo was all ok so we're good to go when the little suckers reach the target!

[Lyndjs]

Great to hear you've had good news. You must be very proud of your weight loss too, that's amazing.

I hope your platelets stay low. Take care xx

[EPguy]

16 (blood) vs 26% (BMB) is a big difference. I was also different in the same direction, 14 (blood) 19% (BMB) at Dx. Published reports claim these should match more closely as discussed here long ago. Do you have results from earlier tests? I've since had several more blood readings.

Stable PLT for 4 months is a great start to post IFN period.