Any experience Leeds haematologists?

[Grendall]

morning all,

Just reading through a few posts and wondering if anyone is from my area and had experience at Leeds St James with Hemo’s and if they are MPN specialists or not?

I would just like to be ready in case I feel I am not getting the right treatment or info, then I could request a second opinion…

TIA. x

[Scottishterrier]

Yes I attend the wgh in Edinburgh my consultant was a Dr Teh I have et jak2+ since 1994 I was under him for two years he transferred down to Leeds hospital in the New year he was brilliant never heard a bad word against him he is very thoroughStay safe

Scottish terrier xx

[cgcheets]

Hi,

Yes I'm under the St James's team and have been since my diagnosis almost 2 years ago. They have been brilliant since the beginning and work as a close knit team. As far as I know they're not MPN 'specialists' but are very well informed. That aside, there's never any harm in requesting a referral to an MPN specialist for an additional opinion if you wish!

Hope that helps.

[DJK12]

As Scottish Terrier has said Dr Teh,who was also my consultant in Edinburgh before moving to Leeds, is an experienced MPN specialist. He is thorough and listens to your questions and answers thoughtfully.

[Maggie-ol]

Hi Grendall,I have been treated by Haematology at Bexley Wing, St James since they diagnosed me with PV in Dec 2016. I am now on Hydroxy and quarterly blood tests at my doctors (at my request) since 2017 and telephone consultations with a specialist nurse at St James’s to discuss symptoms and changes to dosage of Hydroxy. If I have any issues or questions relating to my PV I call them and usually the nurse rings me the same day or the following day, this system works well for me and cuts out long waits at the hospital.

I hope you are feeling well, being well supported and do well under St James’s are

Margaret

[Grendall in reply to Maggie-ol]

Thank you Maggie,

That is a really big help, I will keep everyone posted x

[Hidden]

Hya Grendall yes l attend St James Hematology depth up to now all l can tell you is how great they are. l am called in as and when for venus section because of PV. There are many specialist in this department, but should you request a second opinion it should not be a problem as far as lm aware. Great to hear from you do you have ET or PV l wonder.. Adiewon

[Grendall in reply to Hidden]

Hi Adiewon

Thanks for this. I think I am just trying to get myself ready as much as possible for next week.

This forum has been amazing though I must say.

I have ET with the CaLR not sure about the Jak2 yet until they explain it fully but it is my platelets.

I have been having symptoms a while now but the most recent is that I am itching on my arms and it’s unbearable, even the edge of my sleeve and it triggers it. I must say this symptom is really getting me down and teary it’s awful but embarrassing at work etc… x