What a great day the London forum was I learned such a lot by such great consultants .lt was lovely to meet so many lovely people and say hello to a few was great to meet maz and thank you maz and all your team for the hard work you do I just wish I could have meet and chatted to more people and I really enjoyed the patient speakers I look farward to next year .Best wishes Poppy 6060
What a great London forum: What a great day the... - MPN Voice
What a great London forum
I’m terrible with names. Especially on the day I did my first patient talk. Everyone I spoke to, had a different amazing journey to share. What an amazing community. Eleanor
Hello everyone,I'm new to the forum. I was diagnosed with PV back in April. Wondering if the London forum was filmed,streamed at all. Is it possible to watch it somewhere? Thanks. Kev.
Hi Keviekevstar the forum was filmed live and will be streamed on this site but sorry I don’t know when I am sure Maz will let us know when it will be well worth watching Poppy
Hi Poppy it was lovely to meet you, so glad you enjoyed the day, it was an excellent day. Maz x
Many thanks to everyone involved in the London forum. It was the first time I have spoken to anybody who had the same condition as I have; 23 years with ET, and 2 years with PET-MF. All speakers were so interesting, and the patient speakers very moving. Thank you all again.
So many threads have been started on this topic! I must add my heartfelt thanks and appreciation to all involved. It was inspirational and offers us all hope.