What a great London forum: What a great day the... - MPN Voice

MPN Voice

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What a great London forum

Poppy6060 profile image
10 Replies

What a great day the London forum was I learned such a lot by such great consultants .lt was lovely to meet so many lovely people and say hello to a few was great to meet maz and thank you maz and all your team for the hard work you do I just wish I could have meet and chatted to more people and I really enjoyed the patient speakers I look farward to next year .Best wishes Poppy 6060

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Poppy6060 profile image
Poppy6060
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10 Replies
EleanorPV profile image
EleanorPV

I’m terrible with names. Especially on the day I did my first patient talk. Everyone I spoke to, had a different amazing journey to share. What an amazing community. Eleanor

Mazcd profile image
MazcdPartnerMPNVoice in reply to EleanorPV

well said, and I agree, what a wonderful community we have. Your talk was amazing, thank you, you are brilliant. Maz x

keviekevstar profile image
keviekevstar

Hello everyone,I'm new to the forum. I was diagnosed with PV back in April. Wondering if the London forum was filmed,streamed at all. Is it possible to watch it somewhere? Thanks. Kev.

Poppy6060 profile image
Poppy6060 in reply to keviekevstar

Hi Keviekevstar the forum was filmed live and will be streamed on this site but sorry I don’t know when I am sure Maz will let us know when it will be well worth watching Poppy

keviekevstar profile image
keviekevstar in reply to Poppy6060

Hi Poppy,thanks very much.

Mazcd profile image
MazcdPartnerMPNVoice in reply to keviekevstar

Hello Kev, we won't be streaming it again, however, we will have a video of the whole event available very soon on our website, I will announce the details as soon as it is ready. Maz

keviekevstar profile image
keviekevstar in reply to Mazcd

Hi Max,thank you will look out for it.

Mazcd profile image
MazcdPartnerMPNVoice

Hi Poppy it was lovely to meet you, so glad you enjoyed the day, it was an excellent day. Maz x

Strumpshaw profile image
Strumpshaw

Many thanks to everyone involved in the London forum. It was the first time I have spoken to anybody who had the same condition as I have; 23 years with ET, and 2 years with PET-MF. All speakers were so interesting, and the patient speakers very moving. Thank you all again.

pj1963 profile image
pj1963

So many threads have been started on this topic! I must add my heartfelt thanks and appreciation to all involved. It was inspirational and offers us all hope.

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