Change of Approach to Management of PV in UK

[DougyW]

Saw the senior Haematologist in Bristol on Friday due to the junior doctors strike. She told me Prof Harrison had done a presentation that week in which she'd advocated for regular monitoring of AB and management of the same. This could lead to a change in approach in the UK along the lines advocated by many on here. As an aside I'm restarting Peggy low & slow. Also, this forum was mentioned and praised. That says a lot to me.

[SouthSideA]

I’m not sure I follow. What is the take-away from the recent presentation you reference?

[DougyW in reply to SouthSideA]

Prof Harrison is the UK's leading MPN expert. She is now advocating for the regular monitoring of the JAK mutation levels and management of same. I believe she is also advocating for earlier management of same due to probable long term benefits. For England that mean Pegasus due to the cost of Besremi.

[SouthSideA]

Very helpful. I’ll research her work. Many thanks!

[Anouchka]

great heads up. Thanks for that. Indeed this is a great forum. Good luck moving forward. Stay well.

[LightNights]

Hi, thanks for the info. Out of interest, please will you share the name of the consultant you saw? They sound clued up, so I'm keen to try and get my bristol appts with them if at all possible. Thankyou

[ainslie]

interesting info thanks, has anyone got more info on how we can view or read what she said

[hunter5582]

That is good to hear. Dr. Harrison is a leading voice in the MPN world. Her support for the emerging support for tracking VAF will help move the science forward. Hopefully, her presentation was recorded and will be available.

Thanks for posting this encouraging news.