Wow what a brilliant afternoon. I would just like to say thank you to all that had replied to my nervous post, and to those who spoke to me whilst there.
I wasn't very talkative as was so scared of crying !! which eventually i did.. apologies.
I feel so much more positive listening to the stories of others with ET and the other MPN's and also the professionals.
I wish i lived closer to a city where there was specialist clinics but will be contacting Newcastle and will travel.
I feel like for the 1st time since June i might acually sleep tonight. I cannot tell
you how mich more positive i feel, like i have had a death sentence taken from me.
Thank you Maz and the other lady who ran the afternoon( apologies i can't remember your name)