where can I buy Jakavi from?: Hi there. I am not... - MPN Voice

MPN Voice

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where can I buy Jakavi from?

sonn4eto profile image
6 Replies

Hi there. I am not sure if anyone will read this but I will still give it a try. My aunt has been diagnosed with secondary myelofibrosis and she has been taking Jakavi for the past almost 3 years. Now we are facing the challenge that the government will stop supply her medication for free and she she will be forced to purchase it. AS you may or may not it is quite expensive medication. I have been doing some research regarding byuing it from India but not sure how trusty the suppliers are. Is there anyone here who would be able to provide and advice as far as to where should we get the medication or any sort of useful info? I am trying to help my aunt and get the medication as she will be running out of it very soon.

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sonn4eto
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6 Replies
1466 profile image
1466

Call Good Days for financial support and avello for your pharmacy. We worked with them and our payment Is $25. Good luck. They should be able to help you

sonn4eto profile image
sonn4eto in reply to 1466

Thank you! I will see if that is an option. She is not a US citizen but worth the try... maybe they will be able to provide me with something that could help me :)

Mazcd profile image
MazcdPartnerMPNVoice

Hi, I am sorry to read this, I hope that you can get something sorted out for your aunt, I assume you are in the US, and again, I am sorry but I don't know anything about the system over there with regards to obtaining medication, but I would say to be very very careful and wary about buying any medication from an unknown source. It might be worth contacting Patient Power for some advice, they are an excellent organization based in the US, they support people with MPNs so may be able to help you, this is the link to their website patientpower.info/

Best wishes, Maz

sonn4eto profile image
sonn4eto in reply to Mazcd

Thank you for the information :) I will get in contact with them and see what can be done. Good news is that yesterday my aunt called me and said that she will be able to get enough of the medication to last her for the next 6 months so I have enough time to do some more research and figure things out. Thank you everyone for being so nice and trying to help :)

1466 profile image
1466

Keep looking and asking the places you call if they know of others? Good luck, I admire your helping your aunt 🍀

Jawas profile image
Jawas

Hi.

Hope this helps

It is made by Incyte Corporation

Contact details are here

jakafi.com/contact-us

Good luck

Jawad

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