hot / sore face ? : Hi does anyone get hot / and... - MPN Voice

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hot / sore face ?

6 Replies

Hi does anyone get hot / and face feels sore like burning,but face doesnt feel hot to touch or look hot , strange one i know ! and yes weather been far too hot this week also so im just wondering if theres a connection to my ET thanks 😎

6 Replies
mhos61 profile image
mhos61

Hi, I don't personally suffer from this issue...but I noticed when reading your post in the right hand column 'Related Posts' come up. It seems from this that there are quite a few people describing the same symptoms as you.

Mary

MPort profile image
MPort

Hi I had this problem before I was diagnosed with PV. That and itching on contact with water were 2 key systems of my PV. Once the HCT was reduced the redness went but returned when it went up again. Once on treatment I stabilised. And now if I get a red face (and headaches) I know I need a venesection. The itching persists.

Hope this helps.

Mairead

lucieboo profile image
lucieboo

No, but I get something similar in my feet, hot, burning and painful, particularly when swimming and it goes away when I get in the Jacuzzi. I put it down to circulation in the small blood vessels being disrupted somehow, as I also get 'white finger' if I am cold. so many odd things with PV!

lynnieb profile image
lynnieb

I don't get a hot face, but before I started on aspirin, my toes were SO hot. I was in agony. I went to the doctors (this was before I was diagnosed last year) and they told me it was nothing. It was so painful to walk, yet there was nothing to see. You have my sympathy

Aime profile image
Aime

Hi, I have PV and do get very bright red cheeks and nose! I think sometimes strangers think I have been having a drink but i don't drink alcohol any more as I feel worse when I do. Every sympathy Aime xx😺😺

Jennifer1974 profile image
Jennifer1974

Yes. Its over one eye and on my cheekbone. Comes and goes. Weird.

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