End of hot flushes?: Hi every one. Hope you’re... - MPN Voice

MPN Voice

10,784 members14,980 posts

End of hot flushes?

Cokopops profile image
9 Replies

Hi every one. Hope you’re coping with this awful pandemic..light at the end of tunnel now hopefully. Almost a year since being diagnosed with this ET by phone! And I’ve only had phone appointments since then. Haematologist will probably start me on hydro next month and I’m wondering if those “hot flushes” will diminish.. It happens at any time of the day or night. Specially if I’m tired. I’m 76 years old so it’s not menopause. Thank you for reading this and stay safe

Written by
Cokopops profile image
Cokopops
To view profiles and participate in discussions please or .
Read more about...
9 Replies
Sg143 profile image
Sg143

I am 25 and my doctor thinks that I have essential thrombocytosis I have hot flashes all night. I am supposed to go to hematologist on March 8th

JaK2ET profile image
JaK2ET in reply to Sg143

Good luck with your appointment! I hope it goes well ...

Nickthedevil profile image
Nickthedevil

Hi, I’m sorry to say that the hot flushes may not go away even on hydroxy. I have been on it for 8 years and still get terrible night sweats plus hot flushes during the day. We are all different though so you may be lucky.Karen

Bridie123 profile image
Bridie123

I still get them! Sorry!

Jazzyb50 profile image
Jazzyb50

Sorry, I still get them. Five years on Hydroxycarbamide and nearly three years on Peg Interferon.

Cokopops profile image
Cokopops

Thank you for your replies. Isn’t it discouraging!

Beths3 profile image
Beths3

I’ve been taking 500 mg Hydroxyurea mon- sun for a year and I get the most awful hot flashes , I’m 45 but not menopause I’ve had complete hysterectomy. It’s sometime overwhelming and apparently no cure . If there is cure I would love to know .

ciye profile image
ciye

I have been on hydroxcycarbamide for a year the hot flushes if anything have got worse, I want to change medication but because of covid haematoligist says no.

Daisy-May profile image
Daisy-May

I'm 66 and still get them..

Not what you're looking for?

You may also like...

hot flushes

I have essential thrombocythemia jak2 for last 2 weeks I’ve been feeling very tired and also having...

Hot. Hot. Hot. And stressed.

The heat is getting to me (compounding the effects of a sore throat this past week and general...

Second Pfizer vaccine next week instead of end of April.

I’m extremely lucky and am in contact with a super head of the vaccination clinic at my hospital....

Hernia of the spleen

Hi, I just wondered if anyone else has been diagnosed with a hernia of the spleen. I had an...

Taking interferon in hot weather

Quick question, I took interferon on Saturday night and have been suffering since - very achy and...