Hello There I am new to this site. I have a few diagnoses but have had vestibular migraine added to them and would be really interested to see if anyone can relate to my symptoms as I am so desperate to find something that helps.
I am constantly dizzy but its not vertigo but a constant swaying feeling and if I am standing and not leaning against something or holding on to something solid I feel like I am going to fall over and have quite a few times. I also have POTS (postural orthostatic tacychardia syndrome) and low blood pressure so can feel faint too and the pots was originally thought to be the cause of my dizziness but I am now on treatment and my dizziness is still there. I do get headaches but not often but never lose the off balance feeling. When I stand its when I try to focus on something or someone that its really bad and I feel like I'm falling backwards. Supermarket lights I find make my symptoms really bad too as do places with lots of movement around me. Two specialists have said its vestibular migraine and I have tried propranolol, amitriptaline, pizotifen and serc but all have increased the dizziness and made me feel really out of it. I am now trying feverfew, Q10 and magnesium but its early days on them.
I haven't come across anyone with the same symptoms and sometimes wonder if it is migraine.
Any advice would be really appreciated.