Hello all, I’ll keep it short as possible as it’s a very very long and ‘complex’ situation.
Basically I’ve been having problems surrounding swallowing. I get laryngospasms - these cut off breathing for a short time and although they won’t kill you they’re absolutely awful. Simply drinking can easily set these off.
My issues as still being investigated. My throat was found to be very inflamed so I was prescribed indigestion meds - they helped a bit but I’m still struggling.
Time wise it takes me about 5 hours consistently drinking to hydrate each day and I won’t be alone when I am because I simply feel too scared about ‘spasming’ alone. I can’t be distracted, can’t even watch TV or move my head etc. Definitely 100% can’t work a normal job etc. It’s exhausting.
I enjoy life when I’m not hydrating and try to hold down my minimal hour flexible small business. But I’m almost considering giving that up as time is such an issue. I try my utmost to feel positive and when I’m out and about away from this I’m happy, but I’m tired of living my life *around* this and having this dark cloud over everything, when I should be enjoying life, instead I’m stuck sipping through a straw for hours and hours on end.
I honestly don’t know what the answer is here, I am surviving but definitely not living life to the full and I just wanted to voice my problem because of course it gets me down.
I fully acknowledge I have mental health problems in conjunction with this, but I feel my feelings surrounding the spasm and time issue are valid, is this really something I should just get on with at the expense of an actual quality of life? I’m genuinely so confused right now.