Auto-immune diagnosis-The waiting is ... - Mental Health Sup...

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Auto-immune diagnosis-The waiting is torture...

BrookeMDraper profile image

I have been suffering from these various symptoms for years now and I finally might have an answer. But of course none of my doctors will tell me definitively what I have, just that is if an auto-immune disorder and that it is time to see a Rheumatologist. I think I might have Lupus. But my appointment isn't until next month.


7 Replies

Hello BrookeMDraper, Welcome to this community. Sorry to hear you have been suffering but good that you now have an appointment to see the Rheumatologist. I know the waiting is the most difficult part but I'm sure our community members will have some useful tips for you. Best Wishes

Hidden profile image

Brooke, Welcome to this Site

I suffer from Psoriatic Arthritis (PsA) I have had in now since 1985/6 It started with a dry spot of skin on my head and eventually effected most parts of my body, then it managed to effect most of my small joints and spine, neck etc.

PsA is an autoimmune system that attacks various parts of the body, in other words it becomes more aggressive, if that is the case there are various treatments that can be used.

If this is your problem I may be able to point you in various directions for treatment plans.

Is your possible condition effecting your Mental Health, Anxiety ??


BrookeMDraper profile image
BrookeMDraper in reply to Hidden

Yes, I've had mental health issue for a long time now.

Thank you, I will.

Hi there.

I've ulcerative colitis which auto immune also,

Omg when it strikes it's like I've flue.

I also suffer from pain 24/7 since the age of 13.

I've gone on a gluten free diet.

Try that but be very careful.

Even vinegar can have gluten as it's barley which would be next to a field of where.

I started an AIP diet, which is very challenging. so, it means auto-immune protocol diet and it starts by eliminating a whole bunch of things. No gluten, no nuts or seeds, no nightshades including white potatoes, no sugar, and no additives. I've been on it now for a little over a month and do feel different. I've lost about 40 lbs. (I'm a very large person to begin withmso this is pretty cool)

But I am often not pleased with the taste of my food. These ingredients can also be hard to come by and more expensive than the junk I used to buy. So it has been an event for me to try this. But I am not bloated every day any more.So yeah! 10 out of 10, do recommend.

I hope you feel better more often.


So no I do not have Lupus. Which is a relief.My doctor now says it might be Cronic Fatigue Syndrome. I am getting a CPAP machine soon to help with the breathing at night. So moderate apnea is new to me too.

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