What a ride..

[H_Daughter]

Despite things not always being super easy right now, I feel very accomplished and hopeful today. Moms 3d MRI showed no other brain tumors, and her Gamma Knife radiation is scheduled for this Friday afternoon. We don't have a set date for her to resume immunotherapy since she has to be tapered off of the steroids. The decadron is actually really helping her with weight gain. She has lost about 30lbs since January, at her lowest was 102lbs. Shes now back up to about 114lbs. Still working on building up her stamina and muscle mass.

This morning, as we were getting ready to leave for the MRI and mask stimulation, I noticed one of my cats had peed on the dog bed, and of course has crystals again. Not something I wanted to deal with again in the midst of constant medical issues, but hey why not get it all done at once.

I've been struggling with new life threatening food allergies and my current allergist is no help. I'm learning to find my voice with doctors and what kind of care I deserve, so I'm going to see a new (and hopefully better than my last) allergist next Tuesday to get a full panel testing done again for my food allergies. I also finally have an appointment scheduled to see a chiropractor to deal with my horrid sciatic nerve pain from our car accident. (Thankfully our car insurance is covering it!) Also waiting to hear from my doctor about a referral to see a new dermatologist for another skin cancer screening. Since my likelyhood of having melanoma issues at some point in life is ridiculously high (dad had stage 3 and mom stage 4 x2) I'm supposed to go every 6 months. I've already had biopsies done awhile back, but trying to stay on top of my own health as well as my furkids and my mom's.

I keep waiting to feel some sort of relief or break form eveything life has thrown my way, but I don't see that relief happening anytime soon. In the meantime, all I can do is get shit done, stay strong and think positive thoughts in hope that one day I'll look back and think..DAMN. I dealt with all of that crazy shit and made it through, I CAN GET THROUGH ANYTHING LIFE HAS TO OFFER ME. (but please universe, no more right now. Seriously.)☺

[Bigsister3]

When it rains it pours But keep holding strong and don’t forget to schedule your own appointments. Hang tight:).

[missyrand Ambassador]

You are getting amazing shit done!

Have you considered doing one of the newer full body mapping given your high risk? I've seen it advertised but don't know anyone who has done this yet.

missy

[H_Daughter in reply to missyrand]

Hi Missy,

I definitely am looking into that, I plan to ask the dermatologist, and if they can't do it, I will find someone who will! I rather stay on top of it, and be as precautionary as possible. It's definitely worth the work to do so!

[SGHSweethearts]

Wow you have been dealing with an aweful lot of stuff for sure. Sounds like your mom got some good news. I know coming off the steroids is very hard. We are in the middle of that right now ourselves. It does make them feel so much better, and helps with the weight gain so a double edged sword. So sorry you are experiencing a lot yourself as well. I can’t imagine dealing with anything else but Mark right now. I will pray that everything goes well with your mom decreasing steroids, and that you are able to find relief with your sciatica and allergies. I totally understand that enough is enough. All we can do is take it one day at a time with Gods grace, and I am a little frightened at where we may be headed right now.

Michele

[H_Daughter]

Praying that eveything goes well and starts to get better for you and Mark.

I am definitely not a fan of this roller coaster we are on, but doing my best to ride with all the ups and downs. It is definitely overwhelming most of the time, but I'm learning to take each small victory as a blessing.