Second infusion; and I spoke too soon. I should know better 😕 the fevers have been pretty bad. Although no other side effects accompany them. Which is good. It usually always happens in the middle of the night, around 2:00AM. Not really understanding why.. but thankful that’s all it is. Last night we got to 101.9 which is pretty high. And considering Ryan has seizures I was super nervous he would have a fever induced one. For a normal person that isn’t a terribly horrible grade fever, but still is so nerve racking. Had to get a tepid rag and dab him down and Tylenol until it broke. Took almost 2 hours.. needless to say I’m tired today lol.
Got the infusion on April 2nd so just hoping the fevers will stop soon. He has two infusions left with the combo, but if these side effects continue I’m not sure if they will stop it and just go down to Opdivo.
Ryan has been back to work though! Which has been nice for his mental state. Getting back to normal.
Scans aren’t until the end of May. So we have some time until we see what’s really going on inside. As always anxiety is high. But still no new pains that resemble the hell we went through at the end of 2018. Small amounts of joint pain in the knees. But the pain stops when he is off his feet, which is a good indicator that it isn’t the bone Mets he was used to that were painful no matter what position he was in.
I have read some interesting articles that include Wheat Germ Extract. Anyone heard of that? Also, Quercetin. Interesting research that came from Johns Hopkins on it. Our team doesn’t want him on any new supplements that don’t come naturally from food for now, but it’s still intriguing.
How is everyone else?! Xoxox