Change in sight

[leardallan]

Hi there. Have been diagnosed with semi -retina vein occlusion in my left eye. Have had one injection with Avastin. Haven't seen much of a change. One big change is that I could see much clearer with my glasses off as far as signage at a distance.

[Macular_1]

Hi leardallan,

Sounds encouraging.

Best results in vision when treatment commences, tend to be after the second injection (so we are told).

I am sure that others will offer encouragement.

Please see our treatments booklet, (it will be similar for AMD as for retinal vein occlusion), at the following link;

macularsociety.org/sites/de...

Best wishes

Macular Society

[leardallan in reply to Macular_1]

Thanks for your thoughts, encouragement and information. Allan

[Hidden]

Hi leardallan, I have branch retinal vein occlusion with macular oedema, also left eye. Hope the inj work for you, they ( Inc Lucentis and eyelea) have done for others. You'll know more after your loading dose is done and you have your first review.

Use the amsler grid each week too which should show you improvement in any wavy lines etc.

Try to relax, be kind to yourself, enjoy these lovely spring days.

Best of luck going forward x

[leardallan in reply to Hidden]

Thanks for your words of encouragement. It means a lot.

[Aude]

When I had a vein occlusion in my left eye some years ago the retina specialist told me I had two choices: Do nothing and see if my vision improves on it's own, or have an Avastin injection. I'm usually reluctant to take drugs of any kind, but I went with the injection because I thought it would be a one time thing. I ended up having about 15 injections over the subsequent years. The result was not good. My vision kept getting worse and my pressure kept going up. I wish I had said no to the injections. I couldn't have ended up any worse than I am now. My advice is to limit the number of injections and keep a close watch on your IOP. If you're pressure goes up, seek an XEN Gel Stent operation. I had this a year ago and it saved my eye from having to be removed.

[Hidden]

It sounds like aude had a particularly bad time of it ( sending them a hug too) but remember that we are all different.

I had 19 Lucentis and 4 eyelea inj over 3 years. My IOP went up but was well controlled with timolol drops. If I hadn't had the Inj I'd have lost the sight in my eye within weeks ( I know because I had emergency inj after my loading dose which luckily worked). Instead I have been able to continue reading and working.

I am now on my 3rd ozurdex implant and the difference in my sight is noticeable hence why I have continued.

Of course you must come to your own decision but take a balanced view because if you do nothing now and permanent damage results early on you will have that much longer to live with it and any regrets too.

There is every possibility the inj will work for you but if you don't try you will never know if you are one - and remember they are the ones who aren't on this forum because it worked for them!

Best wishes x