Hi All,
I am in the second year of Eyelea injections for branch vein retinal occlusion and have been moved to 10 week intervals- very encouraging!1 The first 10 weeks was fine, on the second 10 week assessment, the scan looked clear of oedema but on eye exam the optometrist mentioned there was some leakage so she didn't want me to go longer than 10 weeks, I am now at week 8 of the third 10 week gap and have been concerned about my vision for some days. The Amsler grid has slightly wavy lines but do get this sometimes- the change is more in vision- the A in Amsler, for example is partly missing when I look at the chart and whereas I could see car number plates from the window after my first injection I now can't. I can still read a little with the bad eye- much better than when I had the occlusion at the beginning but not as well as in recent weeks.
As I was concerned, I took myself off to eye casualty ( as per instructions in letter given after injections) as I thought maybe oedema had returned and my injection needed to be brought forward. I could only read the top three letters of the eye chart- have been doing much better than this previously.
This is where it gets strange!!
I had a scan and exam by a doctor who looked quite young, She told me that she thought I must have had another big vein occlusion and that injections wouldn't help and the damage would be permanent. She was pointing out things on the scans but they didn't make much sense,
She said she would get her consultant to come and see me.
The consultant examined my eye and looked at the scans, She relied on the younger doctor to align the scans ( she was comparing , on the computer, with the scan from my last injection appt) but said there was no sign of oedema. I asked about what the first doctor had said and the consultant said there was no sign of a further occlusion and no bleeding.
She could see that the change to only reading 3 letters was a large change and said she will ask for a retinal clinic appt before I have my next injection. I have no idea when the appt will be and no idea why my sight has deteriorated if there is no oedema-
I'd be grateful if anyone else has had this experience as it's rather unsettling!!
Thank you in advance
- but when i first got this I am almost sure that I could not see anything much on the TV through that bad eye (my good eye is 20/20) but lately I have been thinking that I can actually make out what is happening on the TV screen now through that bad eye. So maybe there is some improvement
Hello, so sorry to hear this and a worrying time for you. Mr S is just over 2 years on with Eylea injections and heading to his 9th injection on Thursday. He too has been changed to 10 weekly injections and yes we thought that was positive. It has been 16 weeks since the previous injection due to mixed messages but we did speak to the Consultant during this time to verify the changes. It was confirmed that the bleed seemed to have stopped and the oedema in his eye has changed position. Mr S tests his eye diligently, more so as injection day gets closer and this morning for example he cannot see my face but it’s a gloomy morning and still early and he knows it will clear later. It does sound like lack of experience in casualty has not helped. I would ring the clinic to get an urgent review appointment - ours are very receptive and if that fails, ring your Consultants secretary for advice. Hope that helps and you get back into the system soonest.
Good Luck
From The Smilers
Thankyou very much. I will ring at 9am. Hope your husband does well
Hello again, the Consultant did say no two case are ever the same and with a major bleed, sight can never be fully restored. Hang in there on the phone for a positive outcome and fingers crossed your Clinic staff are as receptive as ours.
The Smilers