I've been on steroids for 6 weeks now. Started at 20 mg for a week then decreased by 5 a week and again the following week. Because there was no improvement my Rheumatologist put me back up to 20mg which I've now been on 2 weeks. My hip pain is worse than ever and I am only sleeping a couple of hours a night. My Rheumatologist says it's extremely unusual not to get improvement from steroids in this time so is considering it's not just the Lupus. Just wondered if anyone else has had a similar experience as am pretty worried and extremely tired! Thanks guys
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