Oh God, it doesn't half hurt today.

[jayniey]

Not having a very good day, hurting, better half in hospital (poisoned legs n breathing difficulties), don't know when he's coming home, unable to visit, oh misery. Emergency carer comes in once a day 4 half hour 2 do my fodder n make sure I'm not dead. Bored, worried, hurting like hell!

Right that'll do, whinge over!! Long live mutt n wabbit! Gonna have a look/listen to my own copy of the ad (thanks sher). J. xxx

[Purpletop]

That's dreadful, I hope he's going to be ok and that he will be home in no time. Have you called the hospital to find out what's going on? Will you be able to sleep or are you going to wait for him? It is awful when something happens to our spouses, I can deal with my illness but if my husband has anything wrong with him, I go to pieces. All the best to both of you. X

[jayniey in reply to Purpletop]

Thanks, sweet. Its now 23/4 n he's back. Not in vgc but alive. Thought I'd lost the old buzzard. (Love him, really I do.) Love J. XX

[chrissiij]

Oh nooooo! And there was me feeling down in the dumps as I had a headache and redo crated the inside of the toilet yesterday morning. This put things into perspective.

I hope you feel better soon. Your fellow loopy nutcase a are here for your amusement.

xx

[jayniey in reply to chrissiij]

thanks, much appreciated. Love J. XX

[twist1]

Hi janyiey, my heart goes out to you xx the only comfort I can offer is to say that in hospital your husband is being looked after and he is in the right place to be monitored by the right people. There is nothing you can do and he will be worried about you as well xx

Try and concentrate on looking after yourself, do you have a friend that could pop around, have you tried doing something different, pain is awful but if you have something to tell your husband he won't be worrying about you so much. Xx

[jayniey in reply to twist1]

Thanks, brain not yet in gear, but will resume usual rubbish asap. Lov J. XX

[Sher78]

Really dislike this an awful lot

Sending well wishes 2 hubby 4 a very speedy recovery.

Have u mentioned 2 the carer about hubby being in or is that the only reason u have a carer at the moment (the phrase 'Emergency Carer' should really tell me that but I DO have my lupoid head on & I AM blonde so basically brain is screwed 2day!).

It's awful as obviously u're gonna b worried about hubby being ill, plus I imagine he is basically u're 'lifeline' a lot of the time. As 4 the pain etc, aw honey, apart from sending giant virtual hugs & trying 2 telepathically deliver a shot of morphine 2 u, I'm about as much use as a chocolate teapot (mmm, chocolate!) x

[jayniey in reply to Sher78]

thanks sweetkin. I have emergency carer cos I'm not trusted by the hospital to potter around the house, go to re-energised c**p (ta 4 that one) and lob a ready meal at the microwave (if I don't blow it up first). Basically, they're just making sure that I haven't popped my clogs. Anyway, he's now home 23/4, and fragile. Must wander off, I can't cope with my brainache, someone's using a pneumatic drill in there, painkillers, painkillers, more painkillers. Long live dog n bunny! Love J. XX

[brave]

I hope your ok on your own??and wishing your hubby well

[jayniey in reply to brave]

Ta very muchness! J. XX

[helentad]

Hugs to you. I am in the same situation as you. My hubby is in the Countess of Chester with stomach problems. I have been given emergency care as well. I am also missing my boys (6 year old twin boys) as they are staying at my parents as I can't cope on my own with them, I hate Lupus for that. My family are able to take me to see my husband so I am lucky in that way.

Hope your husband is better and home with you soon. Just a though in Chester they have a dial a ride bus for disabled people. The council is sort of in charge of it. They do charge but not as much as normal taxis and are wheelchair friendly. If you are able and this service is available in your area you might be able to use it to go see your husband. Also Social services might be able to provide care and transportation for you to go see him. Call your local dept and see if it might be possible (it all depends upon the budget available).

Good luck and hope your situation gets better soon.

[jayniey in reply to helentad]

Thanks so much, wish yr hubby well 2! Not a nice situation 2 b in. Love J. XX

[helentad in reply to jayniey]

Thank you. How are you getting on? How are you both now coping at home? When everything is normal do you get any care or just your husband, the reason I ask is that you mentioned about the hospital and thought that it was odd that they had not referred you to social services to be assessed for both your needs.

I have a part time carer and they assessed both of us to decide what help I needed and what help my husband needed in his caring role. Things like shopping and cooking and cleaning. I am under no illusion that caring for somebody is easy, it's more than one person can do running around and doing all the other things as well.

Also as your carer your husband should be contacted by the local Carers organisation ours is NEWCIS they can help with loads of things like form filling and help and advice. He should also be able to receive a grant which is biannual and can be used for Carers breaks, gardening or things like decorating. Social services can give you contact details or they can refer him direct.

Anyway hope you are both ok. Best wishes and gentle hugs Helen