I think there is a light at the end of the tunnel...

[purple-lou]

I've been in a flare for about 7 months. I honestly thought that I would be like that forever. When my rheumatologist told me that I would come through it, I got really annoyed.

Something amazing has happened. My fatigue has improved so much. I've been missing pain killers. That was unheard of before. Up till last week, I was waiting to have the next dose.

The whole family is brighter and the girls are laughing.

I feel like I've got an unlimited supply of spoons!!

I know that I will get poorly again, but I'm going to embrace this wonderful feeling.

I never thought that the placquenil would work. I was wrong.

Anyone else that is feeling low, please hang in there. It will get better. Xx

[mstr]

Hi Purple-lou, what a lovely post and I'm so glad you are feeling much brighter and in less pain......yay xx

[purple-lou in reply to mstr]

Thanks. Hope you are ok at the moment too.

I only seem to write posts when I'm really low, so thought it would be nice to share some positivity.

[mstr in reply to purple-lou]

Bless you, great to hear. Yes I'm good thanks and sofar for me the methotrexate is working. I have slight nausea on taking it and plan a very easy day the following day.......so far I am feeling better than I have for a long time. I feel truly lucky at the moment but have learned lessons on never to take my health for granted again. I bet we have all learned so many lessons from this condition. I'm happy that you are well xx

[Sher78]

That's so nice 2 hear, really pleased 4 u purple-lou, long may it continue ;0)

[purple-lou in reply to Sher78]

Thanks xx

[flutterby]

So good to hear Hope it lasts for ages! One thing I always forget when I am doing really well is to pace myself though, enjoy feeling well but take care of yourself too xx

[purple-lou in reply to flutterby]

I'm trying so hard to pace myself, but it's so hard! I rest every other day. Xx

[MrsB2nd]

I'm the same, felt almost 'normal' (normal for me) for 2 weeks now, waiting for the bubble to burst!

Hope it lasts for you purple-lou x

[purple-lou in reply to MrsB2nd]

I keep waiting for the bubble to burst too!

I never want to get that bad ever again.

So glad you are feeling good x

[Nightjar]

That's lovely news Purple -Lou. Nice also to see that so many of us are feeling better just now ..me included xxx

[purple-lou in reply to Nightjar]

Long may it continue xx

[brave]

great to hear,how do you do it?im 12months in a flare and getting worse and worse ,never felt like this in my life ,its a living nightmare;(

[purple-lou in reply to brave]

I never thought I would come out of the nightmare. I learnt to take it really easy and listen to my body. My partner left work to care for me and the children. That was a huge help. Also, my placquenil has finally started working. Are you taking it? I've had a couple of steroid injections too.

You will come through it. Xx

[brave]

I couldnt tolerate plaquenill ,really really unwell on it ,yellow eyes visual disturbance and it sent me to my bed ,no way have i got time to do that because of a drug that was supposed to help ,were a family of three on our own with no family around ,my husband is the main earner so he cant stay home ,we live in the channel isles where we dont get help from the state its a different system from u,k so its really tough ,ive read so many positive things of late i can only hold on to that and pray that i get there soon ?

[purple-lou in reply to brave]

You will get there. Honestly.

Be kind to yourself in the meantime. Xx