Im still trying to get my head around this condition, along with sjogrens (still can't pronounce it!)and Raynauds. It all came to light after a recent attack of pancreatitis, (Gall bladder n stones removed nine years ago) they didn't understand what had caused it this time, until extensive blood test came back positive for lupus. Two questions if you can help please.
I cant shake of chest infection and have had a course of antibiotics which are great for clearing infection but have been told by chest consultant doxycycline is not good for lupus as can cause a 'flare' whats a flare?? is it the cause of sudden aches and pains in arm and knee?
second question; does anyone know if steriod inhaler will cause problems for lupus/sjogrens/raynauds. I know i could ask the consultant, who so far seems great but he wants to take each problem one at a time and the one that he wants to deal with first is lymph nodes (possible growth) I know this is the more serious/urgent one but I'm fed up with coughing and bunged up nose!
Incidently looking back, I think I've probably had these conditions for at least six years and no one had picked up on it, which seems to be the norm.
I'm glad I've found this organisation as it has helped me understand these stupid conditions.