Oh the pain...!

[Silvermyst]

The last couple of days have seen a gradual decline in my health, I am never free of this illness, but now it seems that a flare is on the horizon and suddenly fighting on is no longer an option and I become a dependent, who relies on my husband for so much more than I reasonably should. But I don't have a choice. My body is screaming, my heart hurts and longs for relief, my head is full of frustration and confusion and the pain relief makes me drowsy..

So I will rest, and gather the strength to get through the day... and tomorrow? Tomorrow is full of new possibilities, full of hope, always looking forward ....

Oh the pain!... sod the bloody pain... it will NOT defeat me!

Wherever this reaches you be strong and be blessed

[roobarb]

So sorry to hear how poorly you feel, silver myst. Wrap up, hunker down, & wait for the worst to pass. Let yourself be pampered by your husband. If he is anything like mine, he will welcome the opportunity to do something for his stubborn as a mule wife. That's me, not you btw.

I hope you start to feel better very soon. Love & gentle hugs. Roobarb. X

[Silvermyst in reply to roobarb]

Thank you, much appreciate your concern. Hubby fab and fussing over me, I am blessed in lots of ways. And yes he would agree with the stubbornness - think he would prefer to do more but my attitude is if I give in I may as well give up! But I must admit that today, I really needed to be looked after

Thank you again x

[Maya23]

Oh, there's nothing worse than feeling a flare coming on! I'm with you there (I'm in bed trying to ward off a flare that's building up -it's probably coming whatever I do to try and stop it!). It feels scary and sometimes overwhelming, you don't know how long you're gonna be laid low this time... sometimes it's like a knock-out punch!

Hope you get lots of love and rest time so you can recover soon. xx

[Silvermyst in reply to Maya23]

Agree with you completely Dryad, steroids went up earlier in the week as I was starting to feel rough but today am off my feet completely, good job its the weekend, deliberately did not plan anything as I was thinking something may be imminent. Oh well, it will pass in its own time, just hope its a quick one (wishful thinking lol) x

[mstr]

Sending you hugs and hope for your New Day xx

[Silvermyst in reply to mstr]

Thank you Mstr, much appreciate your support x

[lucy-may]

I hope your flare is short lived x x

[Silvermyst in reply to lucy-may]

Thanks Lucy x

[Purpletop]

If you feel a flare is coming, shouldn't you take some short term steroids or increase the dose you already have for a short while, to avoid the inflammation? Once you produce the antibodies, they fight internally, die and their debris clogs the kidneys or sticks to arteries, better to stop the inflammation in its track, no?

[Silvermyst in reply to Purpletop]

Thanks for advice, steroids increased on Thursday so hoping that will limit the damage, but only really started feeling dreadful during the night. Much appreciate the support.

[talula]

O bless your heart we know exactly how your feeling! You described it very well. Rest up let those that love you do the caring. Wishing you well x

[Silvermyst in reply to talula]

Thanks Talula, much appreciated x

[brave]

I feel your pain ,im in a bubble of pain ,one persistant flare ,no respite ,just a progressive flare that wont leave me back in my old semi normal managable state:(as this is a progressive disease ,im now so depressed at the thought of never returning to that semi normal state?completely lost in this vile disease ,i feel for you and hope you improve soon ?steroids are a very tricky med for me ,i have adrenal issues from prolonged stress and an ongoing disease ,so steroids will only hinder them even more ,i wish there was some other way of reducing imflamation ?keep well and healthy ,brave

[Silvermyst]

Thanks Brave, am so sorry you feel so poorly

About 2 years after I was diagnosed I had a persistent flare (it was a horrible time) but eventually my body kicked itself into an 'as normal as possible under the circumstances' mode, and although the pain was still there it was not with the viciousness that it had been...

Sadly the more stressed and anxious I become, the worse the pain becomes, so I try and avoid situations that cause prolonged stress (last year was a nightmare!) but I am trying to take each day as it comes and take positive steps with diet (there are certain foods that help to reduce inflammation) to hopefully have a better year... after this blip at the start lol!

Wishing you well x