Downward spiral.

[jo100]

I am feeling increasingly anxious about my health and have been getting distressed very easily. Saw rheumy today and urine tested positive for glucose so loads of bloods done. Have to wait and see if blood glucose high now. Don't think I can cope if I have diabetes too. I hate being a patient! I used to be fun and lively and now I spend my time snuggled on sofa in between naps. Im trying to manage a family and husband whilst I am grieving quietly inside. I am exhausted with life and fed up not enjoying life. I am living in this household but not really in control if myself. I hate what lupus has done to me!!!

[foxglove]

Sorry, not able to help just sendng you all good wishes and say how much I understand the phrase "grieving quietly inside"

Love and hugs from a fellow Scot - now living in Wales

[jamg3916]

I completely understand am also going through. That feeling....not sure what te answer is but feel my life is never going to be the same again. I can only rationalise it by saying I have to re-learn my life with different goal posts...but it's hard. Good luck and best wishes xx

[mstr]

Hi, I hope you haven't got diabetes too I think grieving quietly inside is a good statement and I guess we can say we all either relate to that or have at some point. Like you I lived life at a fast pace with work demanding, family life/friends and enjoyed skiing holidays. It's hard to adjust some days and sometimes I think just saying it on this site helps as we sometimes just need to be heard. x

[tintin49]

ditto to all the above posts. big hugs to all lupus sufferers wherevever you are x

[medic1969]

Dear Jo,

I can completely empathise with you, I've just been diagnosed as tablet controlled diabetic, this happened on top of having my left testicle removed bladder neck work etc all I can say stay positive, I've had to admit defeat and start on Sertraline, as I couldn't cope this has helped big time, remember you are not alone x

[jo100]

Thanks to all of you for your support. It really helps to put your thoughts down instead of them just tormenting you mentally. It is great to know im not alone with this bloody illness. Take care. X Jo

[flutterby]

You are definatly not alone, I understand the grieving inside and the feeling that lupus has changed everything. Hoping for better days ahead for you. xx

[sunshine16]

You're not on your own feeling like that , take care and all the best to all fellow sufferers out there x keep plodding on!

[sabine]

Just to add strength to what others have said. You are defiantly not alone. As someone who has been diagnosed with this illness for a long time and has "to an extent" come out of the other side of it. Managing the illness will and can make things better. I have changed my professional life due to Lupus and god has blessed me with a fantastic partner. Good luck

[Hidden]

I understand, your not alone, it's good to talk about it and not let it beat you. Fingers crossed for you.

X

[MandieR]

Why is it that this time of year, maybe more than others, can make you feel so desperately alone?

I hear every single word that you say Jo and have to admit that I have those same feelings. We are ALL here for each other. Happy or sad, good or bad, sick or healthy x

x

[jo100]

Feeling more positive today. Will phone docs for blood results later so fingers crossed. I am lucky to have a family and a nice warm house with no money worries. Thanks for the support everyone and good health to you all. x

[Slowmo]

Oh dear Jo, as many others have said we all have those feelings at some time or other. My GP referred me for counselling to help me come to terms with the diagnosis and the change in lifestyle, it has helped a lot, as I think it is so easy to forget who we are when our lives feel dominated my our ill health. Good luck with your bloods and let's hope we are all able to count our blessings during the festive period.

[megs_tom]

Grieving quietly inside describes me perfectly atm. Remember your not alone. This site is a lifeline, and we are all here for each other. Big hugs and hope your blood tests are good xxxx

[sassylisa]

I can totally understand how you are feeling, but trust me , once you get yourself onto a suitable cocktail of medication that is right for you, things will pick up for you. It won't be tomorrow though. Try to be patient (I know it rolls off the tongue easily) but a year or two from now, i'm sure you'll be back on track. Chin up and Merry Christmas

Lisa