hello everyone, im having trouble recently at work (mainly), i was a twilight manager before i became very poorly in 2005 with lupus and P.T.Grief ; i almost ran the shop, loved my job, worked 12 hour days and had bundles of energy and life in me. im a mum too and kept my home beautiful, never poorly.
it took 18mths for me to get well enough to return to work part time, i was demoted back to a G.A (general assistant) and although that hurt me ive realised its best as i no longer have to deal with the big things. i work hard and know i can do the job backwards but i start my shift well but the last hour is a struggle and im literally flagging and my body is like lead.
imy job involves speaking to people/staff but my speech can go from normal to slurred and i forget things mid sentance!!! this may sound trivial but im left standing there looking stupid and incompident
my immediate bosses are good and dont expect me to lift pototoe sacks anymore (i cant due to joint pain) but even using a kick stool hurts my knees and hips (im 5ft) and shelving is 6ft high. i want to work, i need to work to keep a roof over our heads and food in tums etc but my body isnt working!!! GRRRR!!! i get called lazy and "come on,chop chop!" they just dont get it, i do my best my mind wants fifth gear but ive only got first gear!!! just want to cry,runaway.....all this and more besides with lupus.fed up
wish santa would grant my wish of a new body!!!