Attack of the Raynauds!!!!!!!!: Just wanted 2 post... - LUPUS UK

LUPUS UK

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Attack of the Raynauds!!!!!!!!

Sher78 profile image
6 Replies

Just wanted 2 post this picture 2 hopefully make a few people smile. Contrary 2 popular belief, it doesn't have 2 be COLD WEATHER 4 this 2 happen! On a good note, my kids find it hilarious when 'Mum's fingers go mad!' bless them. I however find it bloody painful :0( Moments after this picture was taken, my whole hand went lol :0)

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Sher78 profile image
Sher78
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6 Replies
Sher78 profile image
Sher78

If anybody is interested, I have a page on Facebook where I bamble on about my lupus ;0) I'm not looking 4 sympathy or anything like that, I'm just trying 2 spread awareness of 'Invisible illnessess' such as ours :0)

facebook.com/lupusandsher

jo100 profile image
jo100

Ha, ha just like mine. My kids call me a freak. Delightful. Recently started taking nifedepine and it's working really well. Keep warm. X Jo

Sher78 profile image
Sher78

Unfortunately, Nifedipine didn't work 4 me, I was on it 4 about 8 months but unfortunately it increased the frequency of my blackouts & dizzy spells (I once fell in2 a bramble bush while talking 2 my next door neighbour due 2 the Nifedipine. It was highly amusing afterwards but obviously not at the time!) Just make sure u stay away from Grapefruit juice while u're taking it as it can cause a massive drop in blood pressure which equals fainting :0) Glad it's helping u though ;0) As 4 the keeping warm, I wear 2 pairs of socks everyday with thermal bedsocks over the top & STILL can't feel my feet 4 the cold lol. Gotta love lupus & all her secondary friends.....not ;0)

caninecrazy profile image
caninecrazy

love the photo!! lol looks like my hands right now and im indoors! lol.

ive recently had a dodgey mole removed from side of my foot,each week the stitches are checked and the nurses giggle as i remove 3 pairs of socks and two pairs of gloves!! i even wear two pairs of socks in summer as my feet are blue/purple in flipflops! lol

Sher78 profile image
Sher78 in reply to caninecrazy

Just goes 2 prove, it doesn't have 2 b cold 2 affect us :0/ I'm the same with the socks etc. Only problem is sometimes I absolute leak with sweat due 2 being really hot yet my hands & feet r blue! U gotta laugh, otherwise where would we b? ;0)

lemonface profile image
lemonface

Hi Sher, That could be my hand in the pic. I always think raynauds is very patriotic, where the fingers go red, white and blue. hahah I sometines have gloves on in the summer while i`m wearing shorts it looks bizarre doesnt it? I too am on fb will try to check u out.

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