Hi everybody I am new to the site but not new to Lupus I was diagnosed in 2009 and until just recently I was lucky I guess in that I only dealt for the most part with skin issues. However, my sister and best friend took her own life at the begining of this year and since then it has been bad headaches nerve pain in both my arms and legs my hands and feet feel that way most days I have had to go on disablity through the state and they say it is CNS Lupus. I am afraid because nothing they do is working to get it under control it only seems to continuely get worse. Now I am having sezuires and can not even drive due to them.....anyone have any suggestions or insights it would be helpful...it is nice not feel alone in this fight.
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