Our community had just passed 2000 members! - LUPUS UK

LUPUS UK

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Our community had just passed 2000 members!

Paul_Howard profile image
Paul_HowardPartnerLUPUS UK
20 Replies

I thought this might be a nice opportunity to thank the HealthUnlocked team who created and continue to develop this service while keeping it free for all of you. If you're grateful for the website, please leave a comment and I'll let them have the link to this blog.

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Paul_Howard profile image
Paul_Howard
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20 Replies
mstr profile image
mstr

Thanks Paul, I certainly am grateful for the website and it has been a 'life saver' to 'talk to others via the website who are going through similar situations. Many thanks to all those who make it possible:)

caz59 profile image
caz59

Yes, thank you Paul and your hard working team for giving me a site were people understand about this horrendous disease. I never talk about Lupus to the general public as they look at me gone out whenever i try to explain the many probs Lupus brings. I'm sure they call me a hypochondriac behind my back. I feel normal on this site as i know i am in a kindred community who understand. Please keep this site going Paul, i would be very lonely if this site finished. Thank You

grannyjogger profile image
grannyjogger

Thank you Paul and your team for keeping this site running. I met with someone recently I hadn't see for a long time and mentioned my experiences over the past few months since I was referred to my rheumie. When I said I hadn't yet got a diagnosis but I had started on treatment for Lupus. Their response left me very sad. They said they knew someone with Lupus who was for ever moaning because they always had something wrong with them!! At least we can feel safe on this site when we need to 'moan'.

loopy-lou profile image
loopy-lou

A huge thank you Paul and to your team from me too. I would be lost without this site. It keeps me sane in the realisation that others are the same as me. No one totally understands lupus unless you suffer with it. At least here we have others who do understand and we can support each other. A fantastic site-thank you.

lason profile image
lason

thanks Paul. I don't normally write but I read a lot of the comments. It helps alot. Because even my own husband doesn't understand. since moving here to the UK I am lonely, and very depressed. So thank you for the site, it helps me when I read the other comments.

Melinda profile image
Melinda

Great website Paul. Lots of information and support. Lupus affects us all differenlty, but only someone who has it, can truly understand what we are going through.

gillw profile image
gillw

Like so many have said before me, this site is an ideal opportunity for lupus sufferers to vent their frustrations and talk to others with similar problems. I wholeheartedly agree that only someone else with lupus can truly understand, no matter how caring friends and family may be. I've been diagnosed since 1979 (and that was after 10 years suffering so I've had lupus for over 40 years) I have seen so many changes since then (for the better). One day a cure will be found - all of you out there please take heart! Diagnosis is half the battle.

baaramewe profile image
baaramewe

Thanks for this wonderfully comforting site, it is so good to have other sufferers to talk to, as nobody else seems to understand the illness like we do.

ronnie1968 profile image
ronnie1968

Hi I think this site is brillant. This is the first time I have left a comment, but I read comments nearly every day as it gives me reassurance that I am not going mad. I find it really helpful as having lupus is really isolating. So keep up good work.

Coppernob profile image
Coppernob

I have learnt so much from this forum - it's a wonderful resource. So comforting to know you're not imagining things, exaggerating and so on. And I feel glad that I'm sometimes able to contribute something too that I hope will help others. Many thanks, great initiative.

Purpletop profile image
Purpletop

I can only endorse what everyone has already said, many thanks for this opportunity to share thoughts and fears and get support from so many others. I wish this site was a mandatory reading material for all doctors who want to qualify into rheumatology and for those who are already qualified but need their professional development points each year. Thank you.

It's so lovely for us here at HealthUnlocked to hear from our users, so thank you all for your kind comments!

I also want to mention that HealthUnlocked represents a number of other conditions too. Take a look at our directory here: healthunlocked.com/directory

imran profile image
imran in reply to

Dear Paul & Lora ! your are Angels for us , A great site ! especially to me and my wife whom are living in that part of world(Pakistan) where even a Doctor does'nt much knows abot name of Sle . Thank God i found this site , Our luck we did find very qualified Rheume (one of only three Rheumes in our whole country !) , and now got in touch with this very informative site , where i read experiences of lot of Sle Patients everyday. God Bless all Healtunlocked team

Lulabelle profile image
Lulabelle

Hi Paul and Team,

It has been said before, but this site is truly a 'life saver'. Not only have I found this site informative but on my darkest days I have been able to communicate with people all across the UK who can understand what I am going through. It up lifts my heart to know that Lupus and via Lupus UK that more and more research is going into finding not only new treatments but possibly a cure into this condition. Especially when i am hearing of children now being affected by this.

This website has been a God send for my family and partner who also has access to helpful information which has been explained in a way that is easy for them to understand.

The support from Paul, the volunteers and from other lupies is second to none. Please keep up this good work1

Lulabelle x

Maureenpearl profile image
Maureenpearl

Thank you

Skid profile image
Skid

Thankyou Paul and all the team,

this is a great site and it really helped me get through my dark days when I was first diagnosed and knew hardly anything about Lupus.You have all been so helpful. It`s good to know that there are others out there and that we don`t have to suffer alone.Please keep up the "brilliant" work.

Skid x

Sheilainacton profile image
Sheilainacton

THANKS!!!

kewsapril profile image
kewsapril

Hi I've only recently joined, actually my doctor pointed me in your direction. I think this site is not only full of information but a place where I'm not alone. Big thanks for that...

Melinda profile image
Melinda

Thanks.

Great site, very open, supportive and informative!

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