Hi just to let you know i had ...

[Naz2005]

Hi just to let you know i had a Dexa scan today was told its requested by consultant because steriods can thin your bones they couldn’t tell me anything but results will go to consultant so its about 4 weeks wait can anybody enlighten me ? thank you

[nanleighh]

HinNaz 2005, It is standard of care to do a dexascan when a person has been on steroids for awhile. If this is your first dexascan then it is considered your baseline. Then they will repeat it in 2 years to see if there are any changes in your bone density. Of course if you had significant bone loss as in osteoporosis they would discuss treatment options with you. If you had significant bone loss and you decided on treatment then they repeat another scan in 2 years because it takes that long to show significant changes or improvements. It is basically a screening test for people on steroids to determine bone health. Even if you have healthy bones on the first scan if you continue on steroids they usually will repeat the dexascan every few years. Take care and try not to worry too much. Hugs

[Naz2005 in reply to nanleighh]

Thank you very much for the advice much apperciated xxx

[Alex97]

I have had 5 doses of very high intravenous steroids this year so far (each time 3 days of 1000mg per day) as well as between 30-80mg per day and no one has mentioned this scan to me. Should I be worried? Or should I just mention it to fheumatologist at next appointment?

[Naz2005 in reply to Alex97]

Hi i think you should ask your consultant as im to new to all this all the best all we can do here is advise each other good luck xxx

[tiredmum]

Hi, I had a dexa scan years after being on steroids and I was found to have steroid induced osteoporosis. I have been put on Alendronic Acid tablets once a week and hopefully this will increase my bone density. I have not yet reached the menopause which could further reduce the bone density. No one has explained the significance of having osteoporosis so at the moment am living in ignorant bliss haha.

[Naz2005]

Hi i know the feeling its scarey the not knowing aswell as the knowing just hope were all in good hand all the best xxx

[Joy_1]

Hi

I have been on steroids for about 5 years now. Finally thankfully tapering without flaring.

I was put on Alendronic Acid + calcium + dexa scan once it appeared I was going to stuck on steroid for some time.

I was advised to take 2 calcium tablets a day but my GP said take one as they don't realize you have a good diet. She was right I only needed 1.

After 5 years you are supposed to come off Alendronic Acid and give your body a 2 year break before restarting - if you are still on steroids.

Dexa is every couple of years.

I have tried to keep weight bearing exercise up to counteract issues steroids will bring.

Joy

[Naz2005 in reply to Joy_1]

Thank you still trying to get used to all the tests etc yes still on steriods was diagnosed with LUPUS (sle) & FIBROMYALGIA 11.09.2018 after a year long of suffering i have alot of other underlying health issues too xxx

[Joy_1 in reply to Naz2005]

Hang in there, stay positive.

I have UCTD with lung involvement. And as I say finally after 5 years of trying this drug and that, upping and downing meds, adding and taking away meds. I am finally heading into chemical remission.

wishing you all the best

Joy

[Paul_Howard Partner LUPUS UK]

Hi Naz2005 ,

You may find our Factsheet, 'Bone Health and Osteoporosis' helpful. You can read and download it at lupusuk.org.uk/wp-content/u...

[Naz2005]

Thank you x