In June I got results from my second blood tests, all of which came back negative. The tests done were; auto antibody profile (CTD), ENA, dsDNA and C3 and C4. I was not due back to rhuemie til January and was to be tested again for the above things. However, my symptoms got worse and I had new symptoms developing so my GP asked for the appointment to be brough forward. I had a telephone appointment with my rhuemie on 23rd August and told him about the new symptoms I was experiencing (return of alopecia, chest and abdominal pains, severe loss of appetite, neck/shoulder pain, blurred vision and dizziness, brain fog were by I forget words, lose concentration, cant remember how to spell etc.) so he requested that I come to the hospital to have my bloods repeated with a few extra things tested too. I thought for this he would be testing in relation to the new brain involvement but on receipt of his letter I have noticed the only extra things he is testing (on top of the above bloods) is CRP, full blood count, thyroid function (which I was tested for last year and came back negative) and ferritin. Also in the letter he states that I said I was continuing to feel unwell with anorexia but at no point have I mentioned being anorexic, infact he knows how much I weigh and I could do with losing a few pounds if anything! So I don't understand why he would put that?
Can anyone explain why he is testing for these new things and where they think he may be going with this in terms of getting a diagnosis? I'm very confused. After researching what each blood test means I can't see how he is testing for any kind of brain or organ involvement? Thanks in advance for any replies. Hope this finds you all well as you can be xxx