Can't find my words....

[purple-lou]

Just wondering if anyone else sometimes struggle to get their words out or think of the right word??? Or am I going slowly crazy with being so poorly?!!

I even write wrong words on a shopping list......

[gummy]

i lv been like that for about 12 mths now went to my gp and told him i keep forgetting and keep repaiting my self ,and cant say what i want to say and been having these terrible headacks like a raily bad hang over ,ad some blood tests done for demenshere (sorry about spelling ) waiting to see a neouolagye now ,,

[Hidden]

Cognitive function issues are common. Consult with your doctor/s. Neurophysiologist specializing in cognition can be most helpful to pinpoint specific area/s of your brain effected and how to cope/manage it better.

lupusinternational.com/Abou...

Carry on strong.

[Maya23 in reply to Hidden]

Thanks for the link, it looked very informative and I tried to read it but soon noticed that I wasn't able to focus on it anymore! Lol!

[Tigerlily4]

Yes, definitely Purple. My Rheumatologist carried out a study some years ago, the results of which suggested there is indeed a subtle cognitive impairment in those battling SLE. I've discussed the very same thing with him in fact and it's a perfect fit.

[Davros]

The verbal aphasia can be quite worrying and frustrating. Mine settled down when I went onto warfarin which limited the mini blood clots that caused the neurological issues

[LloydE]

Oh yes, i get this all the time, it is known as a Lloyde-ism to my friends, who often laugh. i always think i say what is on my mind but my mouth will say something different, its only the confused looks on peoples faces that i realise that i said something incorrect.

Even simple 3 letter words i can forget easily, it can make one look like an idiot, but as long as i know why i said what i said i don't care what other people think!!

[Hidden]

Definitely. Me too.

Can be frustrating (VERY) but also sometimes hilarious.

Typing the same - I think I have typed one thing and find I have typed totally another, or that random words have found their way in. This frustrates the the Hell out of me!

[megs_tom]

I have this too. I forget things I have said or what eople have said to me. Also quite often I write a word and look at it adament that it is spelt wrong as it jist doesnt look right.words come out wrong all the time.it is like my brain is constantly confused. (sorry for spelling,typin this on my fone)

[LloydE in reply to megs_tom]

Oh yes, this is the one that is so confusing. i think i know how to spell the word, look at it, and say thats wrong. i'll then do a spell check and still think its wrong, i will then ask someone how to spell the word, and still think its wrong. no matter what, certain words just look wrong even when i know its spelt correctly. Its worse with texting, nearly every word seems incorrect to me.

[gwesler in reply to megs_tom]

I know, phones suck. I find myself every bit as sharp as ever. No impairment just unable to "access" Sorry for the RAM reference.

[janiceray]

Me To!!

[jennyhe]

Me to, also wrte words the wrong way around, your not going crazy it's another of the many effects of lupus

[YvetteHW]

I have been like this for ages too, I even forget what I was saying in the middle of a sentence.

[wrongtrousers]

hi

this has been a terrible problem to the extent that I was unable to read.....not even being able to recognize letters to sound the words phonetically. It is much better now and am able once again to read and write.

So often I start a sentence and my husband will say, " FINNISH WHAT YOU WERE SAYING" and I can't think of the next word.....frustrating...or the wrong word comes out. Some times that can be hilarious. but other times very frightening..

I even went to the Dr to ask if I had dementure but he assured me that I had not, but no advice or the suggestion that I see a specialist .

I seem to battled on alone with the fears that come with it but at last feel that I am getting better after a bad 2 years

I trust that yours will begin to subside too.

Grace

[bettie]

I to forget what I am saying. I just stop mid sentence look at who I am talking to, they are waiting for me to finish, silence, then I start laughing. I know it is very, what's the word ( lol ) you have to laugh, it is the only thing about SLE that can be amusing. x

[lupydragon]

I find when I type, all the letters are there but in the wrong order, I have spell checker permenatly on my work pc, just as well as looked like I was typing in Russian the other day, And sometimes when I speak words to me sound slurred, but people say they're not,

Very odd thing this lupus and trying to understand it

[lupie-Cathy]

I too type my letters and words in the wrong order, it takes so much longer to produce a coherent piece of typing these days drives me batty, same with texting and I often can't remember the word for something or someone but at least I can describe what I mean enough for the other person to get what word I mean, it's so frustrating isn't it makes you want to rant and rave but I'd probably get that wrong too lol, I also find I swear a lot more than I used to it's the only words I don't have a problem with!!!

[Hidden]

Lupydragon and Lupie-Cathy: exactly. this is what happens to me too. It does drive you nuts especially if you work in an educational institution (I was always telling the students about writing clearly.... ). Just have to be really careful to check EVERYThing I write!

[wood]

Hi purple-lou,

yes me too but these days I laugh it off of course being a nun and living in a small convent I

wont have to say the confusion that I manage to create, our chaple life can end with us going into fits of laughter, my sisters see the funny side of it all and help me to just be me and yes it is upseting and I am going to get help.but its lupus and I wonder if there is a cure. Best of luck judith csf.

[Minimum]

Hi Purple-lou, I too have the same problems and I am Dyslexic which can make it even harder at times,lol there are some day's it's a good job I now live on my own and the animals don't care what I call them.

I was just wondering I'm on Clexane as I've just had a major operation and I'm home now and I have to say I haven't been quite as confused recently could there be a link?? Sorry for hi jacking your question Purple-lou xx

[river]

Such a relief to know that others have these symptoms. I have tried to explain to my doctors but get vague looks in response. I will not be so concerned in future and continue to use the Lupus Fog excuse,

[lupie46]

I don't have problems reading or spelling. I do forget what I'm saying mid sentence. When I'm really tired I forget the names of every day items around the house. Recently I was trying to say "microwave" to my partner, and the best I could do was "the white thing in the corner of the kitchen".

[oaktree]

Mind fog.. tried gingko biloba ?? herb that increases blood flow to brain, or ashwagandha ? it's indian ginseng that's a great tonic ? I'ave found this herb great for that fogginess that I used to get.. Give your self time on it months rather than weeks. Please as always check with trained herbalist and GP particularly if you are on meds already.

[Lupo30]

I've had this now for four years solid. I can't get my words out, read anything - brain switches off. I used to love reading. Now I just look at pictures in magazines - fine I know but a bit boring after so long. Can't concentrate on tv etc. When is someone going to find a drug for this? Best of luck.

[goldengirl101]

I suffer with this too. It drives me crazy (more than I already am) when I have the words in my head, but they come out wrong! Or I find I stutter over them ..... my mouth feels like it's quivering! Also when I'm explaining something be it important or not ..... I will suddenly forget what I';m saying! It's horrendous, I hate feeling like this! I can relate to you Lupo30 I used to love reading books & would lose myself in them for ages ..... but now I can't, nothing seems to sink in so I read magazines or try to! Best wishes.

[tintin49]

from a a very articualte good speaker i am now a jumbled forgetfull speaker. i take a lot longer to finish a sentence and stop becuase i cannot remember what i am about to say next. i find it quite saddening that i forgetting stuff. i am going to have a scan and have finally been reffered for a second opinion ti st thomas's next month so that i can find out more about whats happening to me. its depressing for me

[schnauzersmudge]

You all have my sympathy. I suffer with this too and feel the same as many of you especially tintin49. I used to be a good speaker and confident but since I've had Lupus (26 years) all that has changed. I not only get words wrong but also numbers and although I have a good laugh about it with the people at the time, inside I am so sad. On the odd day when I feel confident, something always happen and swipes that away and I tend to feel ashamed with myself. Using the keyboard is a good thing because I can take my time but even then I often forget how to spell words and have say the word aloud, pronouncing it and the word up to try to remember to spell it. This makes me feel sad and just stupid and that is one thing I'm not.

[schnauzersmudge in reply to schnauzersmudge]

oooops......One of the last sentences should read:

say the word aloud, pronouncing it and BREAKING the word up to try to remember to spell it,

I must also re read what I have written so it makes sense! x

[purple-lou]

Thanks for all of the input. It's a huge help knowing you are not the only one who is doing these things. I said a funny one today. "I'm just getting a chair to eat my yogurt!!"

[Tr4c3y]

Hi I was just writing to somoene else on here to say that I was always cold and then found that I needed calcium and magnesium which has taken the cold away but it has also cleared my headache and brain fog!!! I found out that the GP doesnt test for magnesium deficiency as a routine blood test but it is very common apparently!!

PS Had a brain scan - rhuemy said my results were normal - my friends have not laughed so much in ages

[gwesler]

Wow, you're not kidding. I've always been a little like that but it seemed increase when I was about 40 (1990). I blamed it on grad school. Then I contracted lupus in 2009 and it's really accelerated to the point of embarrassment. Rather than writing words down, I try to remember not to push conversation too much. Do you find that if you totally "release" the thought that the word will come?

[bari]

I just started having this problem. It is embarrassing. What does this mean long term? Will this get worse? It is scaring me.