Being a Misery ( my words) 😢: No need for replies... - LUPUS UK

LUPUS UK

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Being a Misery ( my words) 😢

Lupiknits profile image
Lupiknits
•8 Replies

No need for replies here, I'm just moaning via keyboard because the dog isn't listening.

Well, to be honest I don't know if I'm being a misery or over-worrying or what! The last couple of weeks I'm been feeling worse with aches and pains, which I have been attributing to the weather and the elbow I dislocated. I've also had a couple of episodes of frozen to the core, with pain, which again I think is the weather. I seem to have a headache every day, but no worse than a standard headache anyone can have. Getting enough food down some days feels like a losing battle.

I have had quite a few non-health stressors, one of which is wishing my ex could get it into his head that ten years after the divorce is more than long enough for him to grasp the idea that I want him to go away and leave me alone. This, and more, is making me unusually short tempered.

The last couple of nights when changing to go to bed (thick socks and wooly indoor boots into bedsocks as fast as possible) I realised my feet were extremely cold but I couldn't feel them in that way. A quick check against my forearm made me realise I'm right, they are extremely cold. I've been following GP's instructions to keep a check on them in case of chilblains or sores. Nothing to see, but I've never experienced such cold without being aware of it.

Now, what I noticed 10 days ago as a black mark that I thought was a bit of dirt is not. I have moles, but this is new and on the inside of the base of my index finger. With my handy knitting needle gauge it's going to be easy to measure it to see if it grows. Not big or odd-looking enough to see a GP, but seems unusual.

So, there you go. Nothing different with the constant weariness. The classic sick and fed up with being sick and fed up.

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Lupiknits
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8 Replies
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whisperit profile image
whisperit

Aw, poor you, Lupiknits. I am feeling like ****** today too (I got my post in just before you), especially as it looks as if I am going to have to call off my night out tomorrow (yes, two evenings out in a year IS too much to ask, it seems).

Hedgewig the hedgehog is also worrying me, wandering about in the daylight today and yesterday.

This sucks.

X

Lupiknits profile image
Lupiknits• in reply towhisperit

You poor chap! I've had one day out and two afternoon teas this year. Hmm, let's look on the bright side: as long as the brain fog stays away, that makes them extra memorable? No Pollyanna, that isn't helpful when we feel like 😢

I hope Hedgewig is OK. Has he/she got a nesting box? Next door makes them for hedgies. RSPCA are very quick off the mark if poor little Hedgewick needs medical attention x

Edited to add: unlike parts of the NHS.

whisperit profile image
whisperit• in reply toLupiknits

Yup, it's a big fail for old Pollyanna here tonight too. I had arranged go to the gig with someone who has been the one friend who's kept in touch and been supportive since I left work. So I'm missing out on that as well as the chance to see my favourite band. Utterly gutting.

There's plenty of hibernation sites for Hedgewig in the garden (thanks to me doing no gardening for the last 2 years) At least s/he's got something out of this situation!

PS I've thought of one good thing - new series of Detectorists starts tonight. Hope you can enjoy that x

PPS Oh dear, I've made my reply to your post all about me! Feel free to do the same to mine

Lupiknits profile image
Lupiknits

It's a conversation old chap, nothing to worry about. I'll have to look up Detectorists because I haven't heard of it. It better be good or you're in trouble. I've had to be retired longer than you, and I very much share the experience of somehow dropping off the face of the earth. Bummer, isn't it? Then Mr Wolf gets in the way of so many social possibilities x

misty14 profile image
misty14

Hi lupiknits

Your not being miserable, life with this illness is so tough without your ex being such a problem after so long!. Just wondering if you have Raynauds diagnosed as there are lots of treatments you could try?. Are you due a Rheumy visit as he could help with your aches and coldness as maybe a flare!. Hope you feel better soon. X

Lupiknits profile image
Lupiknits

Thanks Misty. Yes, I have Secondary Raynauds but none of the meds are suitable. Apart from being a misery, i don't think the pains is more than a flare as yet. No cure for the ex I'm afraid!

Fennella02 profile image
Fennella02

You and I are on the same page of 'Frozen' aren't we? Other than keeping wrapped up and moving, I have no useful advice on how to keep warm - I'm no good at it either! I'm sure that our mutually low body weight is detrimental and it is really cold at the moment - even my Labrador has been shivering! Have you tried Iloprost infusions?

I wish I could offer something useful other than 'layers, layers and even more layers'! Warm hug xx

Lupiknits profile image
Lupiknits

A warm hug is always useful. They let me try nifedipine, but the side effects were pretty bad and it only warmed my nose! I'm sure getting a bit of meat on my bones might help. As to shivery dogs, mine is a greyhound, so you can only imagine how he feels! He's a bit short on flesh too .... x

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