oh dear!

[lupusjon]

saw work occ health doctor today on weather to medically discharge me ..

he hadnt a clue about sle lupus told me it would burn itself out .. what chance i got with idiots like him and thats without my heart problems ...,

[Paul_Howard Partner LUPUS UK]

If you would like us to send your or your occupational health some informationative literature on lupus so that he can learn more then please let us know.

[lupusjon]

thanks paul .this was an independant consultant . i have asked for another consultant next time .also till my heart valve is repaired ,dont have any idea what work going to do with me !"

[Paul_Howard Partner LUPUS UK]

OK, best of luck with seeing another consultant. If you do ever need anything please don't hesitate to get in touch.

[lupusjon in reply to Paul_Howard]

thanks paul have a good weekend

[Paul_Howard Partner LUPUS UK]

Thanks. You too.

[franklin853]

I have this trouble all the time. Even my GP surgery asked me recently if they ever found out what i have?! I have had Lupus for years! idiots!

[Beems09]

My employers are about as much use as a chocolate teapot too they seem to think its like having a migraine and that it will soon get better

[lupusjon]

yea know how u feel they aint gotta clue

[LaughItUp]

My GPs have pretty much all been either clueless or keeping a distance. When I showed up a few years ago at the surgery hardly beeing able to walk and with severe weight loss due to muscle wasting and stomach inflammation, they didn't bat an eyelid and seemed a bit puzzled when I asked to be weighed and also asked to be referred to a nutritional therapist.

They also performed a massive cover-up operation prior to this when I asked several times for a doctor to come to see me at home as I was extemely unwell and could barely even walk around the house.

They fobbed me off by prescribing Diclofenac over the telephone, which greatly exacerbated my condition.

On the third try, they eventually agreed and then spoke to me as if I was crazy to leave it so late. I ended up in hospital and had to have a blood transfusion, where I was abused and treated like an anorexic.

The ward manager also wrote to my GP a couple of days after my admission, falsely telling them that I had discharged myself from hospital, so who knows what they might have been planning to do with me. It was probably only the fact that my partner kept showing up that I got out alive.

[lupusjon]

thats terrible sorry to hear.. my gp very good and understands lupus i count myself lucky