Body throbbing

[letslaugh63]

been getting this for a while tried looking back on old questions it far too many.this is not like electrical feeling it's like my upper body is mimicking my heart beat in time too.feels like I heat up too though not to touch anyone have/had this x

[Sher78]

yup lol! It's horrible cos it's so worrying but I have been assured by my rheumy, it's 'normal' considering all my health malarkey, 4 my body 2 just feel like it's 1 giant 'pulse'

[letslaugh63 in reply to Sher78]

Sher your right it is worrying but not overly as I would be more if it was erratic pulsing.you also commented on the corned beef skin and your right there too.I haven't been diagnosed and it's very confusing as so many different things happening at once it's no wonder hard for doctors to give diagnosis. One of the reasons I like this site is the ability to ask questions to people who really understand instead of panicking and going to doctors again.x

[Hitspicemike in reply to Sher78]

Has it stopped?

[KathinAyrshire]

Dear Letslaugh 63,

Thank goodness for this site, I thought it was just me!! I don't get body throbbing all over but mainly my vision pulses to my heartbeat, makes watching telly a nightmare! Also heating up at seconds notice even though I am sitting down doing nothing at the time, checking in the mirror (something I try to avoid!) my colour is high bu skin doesn't feel hot, stripping off to cool down I find my teeth are chattering a few minutes later! Ah the joys!!

Take care.

[letslaugh63 in reply to KathinAyrshire]

Do you mean get hot flush quickly followed by or same time have a cold sweat.again curiously have you got lupus and what else please x

[caninecrazy]

thank goodness its not just me!! i too have pulsing body and pulsing vision at times too. never mentioned it to anyone as thought they think im even weirder than usual!! lol x

[letslaugh63 in reply to caninecrazy]

I don't get it in vision yet and might not but you've probably been getting it a lot longer than me.out of curiosity have you got lupus and what else please x

[letslaugh63]

I will ask all sorts of questions even though it might take me a while to figure out how to describe it and it's not weird if it's real girls x

[letslaugh63]

Canine crazy and kathinayrshire just read your profiles no need to answer what you've got ty x

[caninecrazy]

hello letslaugh63, yes i do have sle and currently being tested for hughes syndrome (sticky blood). this site is great as things we experience we can tell others on here and they dont think were crazy! lol. i hate going to my rhuemmy with a "shopping list" of new symtoms,i dont always tell her some either x

[letslaugh63 in reply to caninecrazy]

Just googled Hughes i need to know more so I'm going back to questions as would like wider view could you lease read it x

[field]

I have had this pulsing all over my body since I became ill with Lupus. When I am in a flare it gets worse and the more fatigued I am the more prominant it is. When I tell my rhumy about it, he just looks at me and shakes his head from left to right, and says he has never heard of it.

Thank you lupes for confirming that I am not going mad.

[letslaugh63 in reply to field]

Hi field I actuallyhavn'tbeen diagnosed yet but am so glad question helped you x

[letslaugh63 in reply to field]

Just read your reply again and your right it is more prominent when I'm tired x

[letslaugh63 in reply to letslaugh63]

Changed my mind not tired and sitting about to go work and body throbbing this time in my arms well my left 1