Are there any male suffers on here ?

[medic1969]

Hello are there any chappies on here, I've written a few bits and pieces and whilst it's nice for the ladies on here any chaps about

[angiebransom1]

hi medic

sorry another lady. paul howard a vounteer for this website, i dont know if he is a sufferer of lupus but he seems to know alot hope this has helped.

stay well

angie x

[Paul_Howard Partner LUPUS UK in reply to angiebransom1]

Hi Angie,

I don't have lupus myself. I work at the LUPUS UK National Office so I do have a wealth of experience a information to draw from though.

[Jeffmoz50]

Hiya Medic.

Yes I am a male & a lupus sufferer along with diabetes and non alcoholic fatty liver disease, dry eyes and mouth, memory issues and all the related muscle aches, pains and weakness.

I must admit that I don't think there are many men who write blogs. I tend to be a reader rather than a writer, but yes it's good to blog sometimes. Jeff

[Caroine]

Hi medic 1969 & Jeff,

Great to hear from you men.Often times men find it a lot more difficult to accept ill-health.Lupus affects a lot more women than men from research studies but I personally think there are equal male sufferers as much we have women.The thing here is more research studies are mostly able to recruit women most of the time than men in their studies which boils down to acceptance by men and speaking about it.I do hope we get more men on this site,to share their experiences living with this ailment.

I just conducted a study on the quality of life of people living with Lupus.I was only able to recruit a male through this forum out of 30 responses

I wish you all the best through this life changing ailment (Lupus).

Caroline

[Jeffmoz50 in reply to Caroine]

Hi Caroline, I am interested in the study that you recently conducted, or rather the results of it and if you are still looking for data from men. I would be happy to oblige. Jeff

[pirate-yaker]

Hi Medic

I'm male as well - diagnosed with Lupus in 2K, like Jeff I tend to read rather than post (albeit this is a post).

It is good to read the posts as it gives a greater understanding to what is happening - sometimes difficult to tell what ailments are due to aging and what are due to Lupus.

Malcolm

[Jeffmoz50]

Would you credit it? Us men are coming out of the woodwork.

[LaughItUp]

Hi guys and welcome.

Would be really interesting to see if there are different trends in prescribed treatment for male lupus patients compared to female patients (differences in treatment types rather than amounts or doses).

[medic1969]

I've been fairly limited on treatment options I've got such multiple system involvements that they seem to nervous about steroids. All I'm a fat got so steroids are an issue again. Xxx

[Caroine]

HI guys,great to read from you.Jeff thanks you for this, would do. Malcolm,I quite agree with you,It's not just being a man as a woman I find it sometimes difficult differentiating my symptoms.With the different changes our bodies keep passing through and getting on with our busy life.I don't know if anyone experiences the same,I tend to sometimes not have anything to report to my rheumatologist whenever I do visit especially when its on remission but it does feel good to be told that your markers are controlled.ATB,Caroline

[Caroine]

hi medic1969,

so sorry to hear of this,multiple system involvement .Just out of curiosity,what medications are you on and how do you get through the day.Do you get lots of social support.ATB,Caroline

[Kentish_Man]

Hi Medic,

Yes, I am another male Lupus patient/sufferer. I believe that the statistics show that of all people who contract or have Lupus only 1 in 10 are male. Certainly when I go to the hospital for my regular check up's, I seem to be the only male amongst the patients.

For me, it was a Hepatitis and Flu injection (I have had both of these before, but never at the same time) that kicked mine off. Now I have developed other illnesses (partially due to the medications I take and partially due to the Lupus).

My illnesses include: Vaccination induced Polyarteritis Nodosa(PAN), Recurrent Pulmonary Embolisms, Pericarditis, Osteoporosis, Antiphospholipid Syndrome/Sticky Blood/Hughes Syndrome, Type 2 Diabetes, Raynauds Syndrome, Sciatica, Obstructive Sleep Apnoea, Hyperlipidemia & Spinal Stenosis, 2 slipped discs and Arthritis all in the same area - the small of my back.