i was diagnosed with SLE lupus about 4 weeks ago and was wondering if anyone could let me know what to expect over the next few months. i am slowly coming off steroids as advised by the doctors but recently ive been feeling a lot worse everyday and have started having really bad headaches that will not go away. is this normal?
also the left side of my abdomen keeps swelling up but i have been for scans and been told there is nothing on the inside that is enlarged or swollen. . . has anyone else had this problem during or after a flare?.
any feedback to this would be great - i have never spoken to anyone who has experiance with lupus before and are hoping to find the answers i need.