Lupus Rash- tips and advice please :).

[kaw86]

I'm finally back on 400mg of Hydroxychloriquine but my rash seems to itch now and spreaded down my back and on my front chest and tummy. I itched it and it made it bleed so wont be doing that again. Any tips on keeping it safe from the sun and getting treatment? ANd how long for the hydroxy to take effect? I am lil worried. xxx

[LoopyLu]

Hello, I have just started taking hydroxychlorquine and I am itchy too!. My legs are red raw but it does seem to be going off a little bit now. I bought some aloe vera gel which soothed the skin, but as I am sensitive to most products I had to be careful. Keep out of the sun or wear cotton clothes and make sure that you have a 50 sunscreen on. So hard when you have always just sat out in the sun and not had to bother with creams etc. Good Luck, Loopylu

[kaw86]

Nah from a young age i've been wearing factor 35- 40. Just seems the worst today the sun is out and i feel lil fainty and funny. So got my factor 50 on but i need some help with my back with the aloevera. It's looking like nasty discoid raised rash now ugly all over me. ol well. Thanks for the advice cotton clothes is a must this summer! xxx

[chrisj]

I dont have skin lupus but I cant sit in the hot sun so I stay out of it and stay indoors.... Havent been able to tolerate sun for a long time now thanks to SLE and when the suns really hot it makes me feel ill....affects my breathing too.

As for creams I read about the sun factor ones a lot and they seem popular, aloe veras good too for calming your skin. Maybe your gp could prescribe something for your skin? It sounds bad I dont know if calamine is any good?

I had a few probs with itchiness and meds and they passed

Sorry I'm not more help...

[Jojo387]

Menthol based cream!

I have a rash that is, at times, horrendously itchy, I sometimes have scratched until it bled. The cream I use is Dermacool,it comes in 0.5% or 1% strength, 500mg tub and my doctor will prescribe it, ( you can but it, but last time I did that it cost me £26.00. ) it really numbs the itch, but you do end up smelling like a tub of vaporub.

[allys2011]

I too have the rash and it does itch sometimes. You could take some antihistemine (not sure I spelt that right lol). I also have to use a good sun cream. I use a product by Helliocare. It has an SPF of 90!!! It really works too. I use it every year. Hope this helps x x x

[Hidden in reply to allys2011]

Hi Allys2011, the Helliocare product sounds interesting! I wear factor 50, but it just doesn't seem to 'do' it - I still get the butterfly rash on my face, really sore and swollen. Where do you get the Helliocare, is it online? Thanks everso, Ann x

[discoqueen]

Hi hun look at my picture .... I've got it all over even my privates lol .... Had it since September last year and is just starting t calm now ...... The only cream that took the pain away is beamethasone valerate ...... Am also on 600mg of hydrox 80mg steroids and 1000mg of some liver transplant med ....... diprobase is fab at nite ...... Wish u all the best i so know how u feeling xxx

[RebeccaAnn]

Hi, I find cool bath/shower takes the itch away for a while. Antihistamine cool the blood and stop itching. I tend not to put anything on my butterfly rash apart from bio-oil ( to help stop scarring ) My blood becomes very hot and i get covered in heat lumps... Drives me insane. Not thought about calomine lotion .... Its stops chickenpocks itching... May be worth a try x