Feeling a little down at the moment after 30yrs of problems with SLE, Fibromyalgia and S/S . Two Tia and everything else that pops up with having these horrible illness I have just been refused my incapacity benefit after having it for some years. I have been told I have been put on the back to work programme. I am 55 If i had been working I would have been off for the last month just with a UTI that just is not going away. I feel so unwell I always seem to get shortness of breath and chest pain for some reason when unwell. How could I go back to work, who is looking at the claims? I have not had many months in the last two years when I have not had an infection. I will object to their decision. Not sure what the outcome will be. So many time wasters pretending to be ill make it difficult for the rest of us. I find it hard to understand why anyone would want to be ill. I should be ecstatic at the moment I have just got a new granddaughter but feel frightened most of the time I will not be around to see her grow up. If only people could understand what it is like. I feel most of us try very hard to be normal and carry on even though you know at home you just collapse. Sorry have gone on but needed to get it out so fed up with going on at the family. It's hard being strong all the time. I will pick myself up and carry on regardless. Thanks for listening. X I have a rubbish Gp.
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