Has anyone who suffered hair loss whilst in first stage following diagnosis and trial and error to find meds that work found any grew back?
Daughter (aged 24) diagnosed in June and been on Hydroxychloroquine since then, started Axathioprine end of Sept (whilst been on varying dosages of Prednisone - been on 30 dropped to 25, 20 and just moved to 17.5). Last month saw Dermatology who provided steroid cream for face and another none steroid to use alternative days on face and another gel for the scalp where sore areas and hairloss which only started about 2 months ago.
We understand we won't see the Azathioprine showing if it is doing enough or even anything at all until the end of the year and Hydroxy (being an immune moderator not a suppressant) is doing what is can already, with steroids just trying to help reduce the varying symptoms whilst waiting.
But the hairloss is continuing with patches and areas getting bigger - I can't say that even when being on the highest dose of 30mg of prednisone it has made much difference to the follicle damage lupus is doing, it appears to just be continuing.
Has anyone had similar experiences whilst waiting to find the right meds for you and get it under control for the first time? Did anyone find any grew back?
Thanks for any advice or experiences shared.