Last I was on here was complaining about having Hives,. They did eventually clear up with short course of prednisone. I have since seen dermatologist for a get to know meeting. She said that she was familiar with hives affecting Lupus patients in a more aggressive manner than the norm, after all it is all histamines. I was fine from that point last year up to August when I had another flare up of face and muscles while on holiday with family. Poor kids, they are starting to blame themselves for not being more careful with me on holidays.
Today I am looking for information or experiences of Intersitial Cystitis. I use to get attacks quite regularly before my lupus diagnosis, but after starting treatment it has not been a problem for 6 years. For the last three days I have been suffering a lot, was so unexpected and disappointing after going so long without. I have found "Lupus Interstitial Cystitus" on-line but not a lot of help. Has anyone else had this kind of flare?
Thank you for any input.