I Survived : Hello everyone, just a quick message... - LUPUS UK

LUPUS UK

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I Survived

CecilyParsley profile image
63 Replies

Hello everyone, just a quick message as I cannot see very well with two infected eyes but I am through the operation and my Consultant got all she could of the mass.

Afterwards sadly I haemorrhaged so had to be plugged and put on a drip for a few days. I am so grateful to the Consultant for going outside her comfort zone and doing a complex bi lateral polpectomy under a local anaesthetic, the Anaesthetist for her constant encouragement and advice when I was chocking on blood, the recovery team and the wonderful junior doctors who really are undervalued and underpaid and the nurses who went above and beyond despite being short staffed.

I am relieved to be home and starting the recovery and waiting for the pathology results.

I sincerely appreciate all your kindness in messaging me ❤️ xxx

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CecilyParsley profile image
CecilyParsley
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63 Replies
Tiggywoos profile image
Tiggywoos

oh my goodness you truly are superwoman !!!!! Sending you loads of get well wishes .. cliche but take each day as it comes angel 👼. You’ve done so amazing you should be so proud of yourself xxx 😘

CecilyParsley profile image
CecilyParsley in reply to Tiggywoos

Thank you so much xxx

Pippin20 profile image
Pippin20

Wow, you've really been through it!Sending positive thoughts and best wishes for a swift recovery. X

CecilyParsley profile image
CecilyParsley in reply to Pippin20

Thank you xx

♥ xxx

Salzer profile image
Salzer

So glad you're safely through it Cecily. Sending you all the very best for your recovery. Take care and rest up well. Keeping everything crossed for your results x

CecilyParsley profile image
CecilyParsley in reply to Salzer

Thank you so much xx

MusicalFurbaby profile image
MusicalFurbaby

Look at you, going through such a horrendous experience and coming out the other side! Wonderful to hear you are in one piece and recovering at home. Let us know how you go with the results x

CecilyParsley profile image
CecilyParsley in reply to MusicalFurbaby

I will do thank you so much xxx

MEGS53 profile image
MEGS53

so very glad to hear this 😀

Take things very slowly and enjoy the fur baby cuddles. Gentle ones though!

Sending gentle hugs from me and best wishes for a speedy recovery 🤗🤗🤗🤗🤗🥰🥰🥰🥰🥰

CecilyParsley profile image
CecilyParsley in reply to MEGS53

Thank you Meg xxx

MEGS53 profile image
MEGS53

😘😘😘😘

LalSD profile image
LalSD

Dear Ceciky, I am so happy to read you made it. So proud and happy. It must have been very difficult to get to this point You made it. I hopevthe rest of the waiting results is less troublesome.!

With love, L xx

CecilyParsley profile image
CecilyParsley in reply to LalSD

Yes I did. I was so worried that I wouldn’t but I am still here and fighting. Thank you very much for your kind words xx

BonnyB profile image
BonnyB

So pleased to hear you are back home , on the mend and you've been taken care of so well. Rest up lovely , let us know how you are doing x

CecilyParsley profile image
CecilyParsley in reply to BonnyB

Thank you Bonny xx

Lizard28 profile image
Lizard28

You are a very brave lady, wishing you a speedy recovery and best wishes 🤗😘

CecilyParsley profile image
CecilyParsley in reply to Lizard28

Not brave when they put the balloons in. I have never screamed like that. I went from hero to zero within two hours lol but thank you so much xx

Chris21 profile image
Chris21

Thats grand you've come through Cecily. Now you’re home, take it easy recovering and hopefully it wont be too long for good results. Im sure Finlay & Skye will keep you occupied with their antics. love and best wishes for better days to come. xx

CecilyParsley profile image
CecilyParsley in reply to Chris21

Oh they missed me nearly as much as I missed them Chris. Poor boys have had hours alone as well as different people checking in on them so they were quite stressed. It is strange you know that goofy Finlay who literally eats the face off ne normally jumped into my lap, had a good sniff and very delicately licked me on the nose bless him. It brought a tear to my eye. It was as if he knows he needs to be gentle. I am keeping the dynamo that is Skye at arms length. He has a tendency to paw peoples faces so he gets fussed when he is sat nicely or being held by my husband.

I have bought them dog puzzles and it is amazing that Skye actually finds the treats quicker than Finlay. I also got them a toy where they have to get squeaky squirrels out of a tree stump. I will never tire of watching them. They are the best medicine for sure ❤️🐾🐾

Lupiknits profile image
Lupiknits

Good news! Take care of your precious self x

CecilyParsley profile image
CecilyParsley in reply to Lupiknits

Thank you so much xx

Krazykat26 profile image
Krazykat26

Good to have you back Cecily 🤗 Well done for getting through your ordeal..we've all been thinking of you. Rest up now and best wishes for a speedy recovery 💜🌈🦋xx

CecilyParsley profile image
CecilyParsley in reply to Krazykat26

Couch potato for a few weeks Kat even though I am twitching already wanting to clear up but resist I must 🫣😬 xxx

JCZW profile image
JCZW

CecilyParsley

All the best for a speedy recovery.

It sounds like you really went through it.

Big hugs 🤗 to you. Xx

CecilyParsley profile image
CecilyParsley in reply to JCZW

Thank you xxx

stiff19 profile image
stiff19

🤗🤗 best wishes for recovery and glad it went well brave lady 🙏xx

CecilyParsley profile image
CecilyParsley in reply to stiff19

Bless you Stiff and thank you xxx

rosebud52 profile image
rosebud52

So sorry to hear this, sending you the very best of wishes for your recovery X

CecilyParsley profile image
CecilyParsley in reply to rosebud52

Thank you Rosebud xx

Haylz2109 profile image
Haylz2109

Oh bless you've really been through it! Sending you love and wishing a speedy recovery, glad to hear you're home. Make sure you rest up now 💕 xxx

CecilyParsley profile image
CecilyParsley in reply to Haylz2109

I have been warned if I bend, lift or do too much in the next 2-3 weeks my scar tissue will burst and I could haemorrhage again so I am keeping my head high lol xxx

Haylz2109 profile image
Haylz2109 in reply to CecilyParsley

Oh Love you that all sounds like so much to deal with ! Glad you are resting though and fingers crossed now nothing more will happen just a good recovery 🤞🏻 here if you ever want a chat or rant 😊💕 xxx

CecilyParsley profile image
CecilyParsley in reply to Haylz2109

Thank you so much. I am getting there, less pressure behind my eyes and the toothache is better today. I managed to chew toast this afternoon which was lovely despite not being able to taste it xxx

Haylz2109 profile image
Haylz2109 in reply to CecilyParsley

More than welcome, so glad to hear some things are getting better for you. Let's hope the taste comes back asap too! 🤞🏻💕 xxx

hopegalore20 profile image
hopegalore20

Hi CecilyParsley, You have been through a lot.

Wishing you well.

We are all thinking of you. Xx

CecilyParsley profile image
CecilyParsley in reply to hopegalore20

Thank you so much xxx

Bowenlady profile image
Bowenlady

you have been through a tough and frightening ordeal. Wishing you a speedy recovery and sending you lots of hugs and love. Please keep us posted on your recovery.

CecilyParsley profile image
CecilyParsley in reply to Bowenlady

Thank you so much xxx

lupime profile image
lupime

Wishing you all the best for a gentle recovery. It sounds like in the end, despite complications you were well looked after and your wishes listened to. On here, we don't always feel our opinions are valued , so its good to hear that in this case yours were. Its a shame you had to fight so hard for that to happen, but well done - you are truly a super-hero and a very strong woman. Rest up and recover. x

CecilyParsley profile image
CecilyParsley in reply to lupime

Thank you for your kind words. I didn’t feel particularly brave but I was so grateful that despite my Consultants reservations and her being outside her comfort zone she went ahead with local anaesthetic.

It would have been hilarious if not so painful because junior doctors, recovery staff etc all came to watch. We had conversations about dogs, food, Greys Anatomy and Casualty. I was able to see the bits of mass come out on the end of an instrument of torture called a claw scissors that literally ripped it off the bone. No one complained when I coughed blood over them and they all made a point of patting my arm and saying well done you as I left.

It was all going so well until it didn’t. I did say that if they tried to use the balloon stents again I would discharge myself as I honestly had never experienced such pain in my life and like all of us I live with pain. I just truly hope the damned thing does not regrow 🙏🏻 xxx

lupime profile image
lupime in reply to CecilyParsley

keeping all my bits crossed for you x

KayHimm profile image
KayHimm

Great it is over! You take it easy. No baking fancy cakes that require too much! Just rest.

Let us know the results. Fingers crossed.

xxK

CecilyParsley profile image
CecilyParsley in reply to KayHimm

Thank you so much Kay. No no cakes this week at least 😉 xxx

honeybug profile image
honeybug

Dearest CP 🥰

I’m so elated to hear this good news…sooooo sorry about your hemorrhaging and grateful that it was stopped.

I just said a special prayer for you sweetie.

Best wishes for a quick and full recovery hun.

Love and prayers always.

EJ 🤗♥️🥰🙏🕊🌿🌸🦋

♥️🙏♥️🙏♥️🙏♥️🙏♥️🙏♥️🙏♥️🙏♥️

CecilyParsley profile image
CecilyParsley in reply to honeybug

Thank you for your kindness as always Honeybug, so very much appreciated xxc

svfarmer profile image
svfarmer

🙏🤗🤗💞

Carcrashgal profile image
Carcrashgal

HUGELY well done for coming through all that. Sending hugs (gentle ones) and prayers for a swift and thorough recovery.

CecilyParsley profile image
CecilyParsley in reply to Carcrashgal

Thank you xx

GloomyEeyore profile image
GloomyEeyore

I am sorry that you went through such an ordeal. Having such a wonderful medical team must have been a great comfort to you. So glad that you are now home. Take it easy and rest up. Xx 🌈💐

CecilyParsley profile image
CecilyParsley in reply to GloomyEeyore

Thank you so much. Yes it was such a positive experience until it went wrong lol xxx

Maverick77 profile image
Maverick77

Get well wishes going to you. I hope you recover well xx

CecilyParsley profile image
CecilyParsley in reply to Maverick77

Thank you Maverick xx

Pumpkin2009 profile image
Pumpkin2009

You've been so brave. Glad it is over and you can now mend. Wishing you good results. Be gentle to yourself.

Lots of healing hugs coming your wayl

CecilyParsley profile image
CecilyParsley in reply to Pumpkin2009

Thank you Pumkin xxx

Stills profile image
Stills

good to hear that CP, wishing you a speedy recovery x

CecilyParsley profile image
CecilyParsley in reply to Stills

Thank you so much xxx

Stills profile image
Stills in reply to CecilyParsley

How’s the recovery going CP

CecilyParsley profile image
CecilyParsley in reply to Stills

Hi Stills so kind of you to think of me. I am getting there now I think. Still have a lot of swelling, gunk etc but I can actually smell a little and taste certain things so I am thrilled with that. It is taking longer than I expected. The packing that I swallowed apparently had some loose bits that attached to my nostrils. I could feel a soft spongy lump in my good nostril and panicked. I could not breathe and worried something was wrong. I was so fortunate that the GP I saw used to be an ENT Doctor and worked with my consultant. She rang her and explained that I was so swollen and there was obstruction of my nostril. Apparently they fully expected the swelling and said unless it was a dire emergency they would do nothing in case of a further bleed given that the bones were shaved during the op. Her guess was that this packing would dissolve this week and to increase the douching and give me steroids. It has just worked so clearly she was right.

They have left a whole month from the op to see me to ensure that I am healed before they insert a probe. The only drawback is I have to wait another two weeks fir the lab results .

How are you doing lovely? Xxx

Hoofprints profile image
Hoofprints

Thinking of you and sending you a virtual hug 🤗

CecilyParsley profile image
CecilyParsley in reply to Hoofprints

Thank you so much xxx

daisydayz profile image
daisydayz

Thinking of you CP & wishing you a speedy recovery 🩷🫶🩷

CecilyParsley profile image
CecilyParsley in reply to daisydayz

Thank you so much Daisydayz xxx

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