Professor K Raza

[Haylz2109]

Hi all me again sorry for all the posts but I have literally had the worst January been so ill I've barely been able to leave my bed, went to the gp they tried me on antibiotics didn't work then tried me on naproxen didn't work ended up having to go to a and e under rheumatology advice line instructions and they did chest xray and put me back on steroids the highest dose I've ever had starting off at 60mg! I'm still feeling really bad and not sure if something is going on with my sinuses as feel like I've been hit in the face with a shovel 😖 anyone else had this? Found out too after having professor D'cruz not want to see me (had funding he just advised he would not do anything different than what my current rheumatologist has due to my bloods not showing) that I now have an appointment to see a professor K Raza at the Aberaeron care centre. Has anyone had any experience here with Prof K Raza ? I'm so nervous as I feel like I'm back to the start 4 years ago and really low right now I just feel broken!

Sorry for the long post, Thanks in advance for reading and any responses 💕

[Tiggywoos]

I’m sorry you’re having such a rough time of it 😢😢I wish I could offer something constructive but I’m afraid a virtual hug will have to do . Something similar happened to me with Prof Cruz .. he did bloods and said he agreed with UCTD but wouldn’t change hydroxy until symptoms changed . Symptoms did change but I don’t have energy to go back to London .

I’m not familiar with Prof Raza there is 2 on line ? What did X-ray results show ?

Take care angel and fingers crossed someone will reply and say they have seen your consultant xx

[Haylz2109 in reply to Tiggywoos]

Thank you so much for that 🥰 oh did it ? Sorry to hear you went through the same ! I found out today it was definitely because my bloods didn't match usual lupus ones why he wouldn't see me so not sure what is next from here really. Chest xray was clear thankfully but hospital placed me back on steroids believing I'm in a flare. Turns out the only reason I now have this appointment with Prof K Raza is due to me being classed as urgent and he is the only one within my area that had the earliest appointment so after speaking to a rheumatology head nurse today she's placed me on 4 more weeks of steroids a new tablet to try called colchicine and I'm also back on antibiotics due to sinusitis. It's all come at once really!

Thank you very much for your reply 💕

[Tiggywoos]

forgot to say … do understand the “hit with shovel” CT scan of sinuses was clear though. Have you had scan ? x

[Haylz2109 in reply to Tiggywoos]

It's ok, I've never had sinusitis before so didn't know it would feel like this but it's horrific really hoping this lot of antibiotics do the trick as it's my second within a month. No they didn't do a scan on my sinuses just on my chest which was thankfully clear xx