indentations appear anywhere

[stiff19]

has anyone had these indentations appearing I’ve had on face arms hands feet and these in legs. Terrible acheing legs then these appear . Only thing I can find resembling them is anetoderma. Thankyou 🙏

[KnitSewPurl]

Sorry Stiff no help here .. hope you find some relief 🙏

[stiff19 in reply to KnitSewPurl]

Thankyou🙏 they don't last too long thankfully just another unusual skin happening though I did see someone post here before with them but years ago 🤷‍♀️

[thestorm in reply to stiff19]

😘🥰💗💖🐺🐾😇🤗🌺😊🙏🌹🌻💝

[OldTed60]

I get temporary indentations in my hands where tissue has gone relating to my secondary Raynaud’s and Erythromelagia. Legs I get spells of really awful gnawing pain - especially in knees - and notice deep indentations but more as lasting muscle wastage than yours maybe. I am told this is most likely due to unintended weightloss over the past few years.

BCos it’s been so bad of late I was sent for knee X-rays last week but nothing found at all so ageing osteoarthritis now excluded thankfully 😅. Also my rheumy excluded PAD last year so rheumy nurse asked the vascular dr and apparently he said pain is secondary Raynaud’s affecting my knees. He may be right but he blamed my knee pain on wear and tear OA and loose cartilage a few years ago before my systemic sclerosis and EDS were finally confirmed earlier this year by an SSc expert, he’s so proved himself unreliable!

Lately I have wondered about APS as seem to get such bad Livedo in feet, thighs and knees as confirmed by a different rheumy some years ago. But the local fellow said not livedo reticularis so just blaming Erythromelalgia for now which also causes fluid retention/ Lymphodema - makes some sense for me - although looks very mottled like salami in my feet and knees! Always had this livedo mottling since was a child but much worse now along with awful gnawing leg/ knee pain.

Could you get assessed for Lymphodema perhaps and get PAD excluded? I think practice nurses can do this and maybe there are lymphoedema clinics near you for lymphatic drainage? I’ve heard of these but never attended one. Do you have HSD(hypermobile) / EDS I wonder? I’m newly diagnosed aged near 61 and now blaming a lot on this!

[stiff19]

I have had these everywhere including face and interestingly there seems some tissue loss in couple of areas where they appeared and yes gnawing cramping pain.i am overweight but not an over eater and sure to do with thyroid and not being able to do what I used to. I also was told I may need knee replacement in time due to cartilage loss but have recent problems with knees also .I have levied reticularis , skin always mottled young too but worsened when all my problems began in 2018.have raynauds also , very swollen neck glands all the time and yes my hands feet and knees look like salami at times too nothing diagnosed( but my daughter has no results yet but HSD EDS suspected. )but I am hoping to now see rheumy In London new year. I am currently trying to get medical notes and pull things together to see private rheumy re other symptoms besides myasthenia ones.I am now being helped by advocacy with neglect from nhs but having no trust in local hospital will now be seeking help elsewhere and with specialists with knowledge. I am 54 and age is always to blame , when I was young and back problems began I was told so sorry you are very young to have this, now im told it's my age. 🤷‍♀️ I have learned on this journey that a specialist label is not a sign of knowledge. It is scary that you can see a specialist and their knowledge may not cover what you need it to and they dare to diagnose or not on what they have no or little knowledge of creating suffering and damage.i have no specialists locally to be able to reliably diagnose as they are not or have expertise.very unreliable.ive seen a neurologist whom it turns out his speciality is to do with computer work, mri scans X-rays etc, its a muscular neurologist I need a myasthenia expert, it turns out I have not had many of the relevant tests yet its been ruled out as not appearing to be myasthenia when indeed he has little if any knowledge of it ,and a brain scan will not show its myasthenia 😡. I wonder a lot but will always do so I guess as the experts are few and far between and many of us cant afford them so we aren't afforded the help or the opportunity to self help.anetoderma is very interesting find, have you looked it up re yourself, ? might be worth looking at 🤷‍♀️

thankyou for replying 🙏

[VeeWat in reply to stiff19]

have you heard of this myasthenia clinic in London? I hope you can find a good muscular neurologist.

stgeorges.nhs.uk/service/ne...

londonneurologist.co.uk/mya...

[stiff19 in reply to VeeWat]

thankyou 🙏