Internal tremble - frequency and cause

[StriatedCaracara]

Since having covid in 2020 there are times when I suddenly feel trembly inside.

I feel less steady, movement and sensation can be affected slightly. Nobody would notice but I don't feel right.

This happens after being very busy, more stressful times (eg, being in a meeting) or having to be out in the sun (even if fully protected from uv).

Just wondered if this was common in SLE, and / or after covid?

Also, has there been research into what causes this? I assume something happens in the brain, that affects nerves..giving the same affects as in MS, but temporarily.

What is the best treatment or way of dealing with this?

Thanks

[Heatheric]

Hi there, I have similar symptoms at times. Spoke to gp who did a quick assessment and said it's not parkinsons pattern and most likely essential tremor. No cure but there are ways to manage it if it becomes a problem in daily life. I hadn't linked it to covid but it could be. I thought it more linked to a period of flare that I've just been through. Seems to have settled now and I haven't noticed tremor lately. It's a mystery isn't it. Hope it improves for you.

[bookish in reply to Heatheric]

Hi, it could possibly have been a flare or covid as both might have reduced your B vitamin levels. Although not all tremor is B related, it can be, and in my family everyone with an 'essential tremor' diagnosis also has/had a B12 deficiency of some kind.

[bookish]

Hi, I wonder if this could be a mast cell dysregulation symptom for you. Stress and sunlight can be triggers for degranulation and it is common with SLE and implicated in covid/long covid. I get a strange internal vibration/shaking, usually when I lie down to sleep but generally only when it is also windy weather or low pressure, which are triggers for me. During daytime those triggers also make me shaky, dizzy, balance less reliable, more pain, itch and weird sensations. Mast cells and nerves are very closely intertwined. I use magnesium and quercetin which do help me. Best wishes

[OldTed60]

I get this along with a barely discernible tremor on and off. I haven’t had Covid. I do have sjogrens, hypothyroid and scleroderma. I don’t have POTS but do have gastroparesis, slow colon transit and gerd plus SIBO. It’s definitely related to my gut and I suspect drop in blood glucose during night ie hypoglycaemia although I’m not diabetic. I do have a damaged vagus nerve causing autonomic sensitivity ie I black out if I have a shock ie fall hard, get too scared, overwhelmed, dehydrated or malnourished.

My neurologist tested my micronutrients a few weeks ago and my B1/ thiamine was apparently a bit under range so the person who suggested B vitamin deficiency could be right. However correcting this is not going to be easy for me on my soft/liquid/ low fodmap diet and no idea how long I’ve had this for. Worth getting micronutrient testing if you can.

[LuluM25]

I too have this 'trembling within' (love your description ) at times and it affects my mobility and balance making me clumsy. My description is that "I feel wobbly"! I can see that it also affects my hands and I'm less able to do things using fine motor skills. It happens to me I think when I'm tired (muscles feel tired) and need to rest or is it that the trembling feeling makes me tired?! I don't really know. I've mentioned it to GP and Rheumatologist and the only comment back from rheumatologist was that long term steroids can weaken muscles. That's a possibility as I've been taking steroids for 5 years now, at varying doses, to control skin symptoms. However, I've only noticed the trembling since a hospital stay last year for AKI, sudden very low kidney function, treated with high level steroid infusions. Sorry, I don't have any advice or answers but I'm interested to read if any others do. Thank you for raising this.

[MEGS53]

Hi

I also get this quite a lot.

I have EDS, pernicious anaemia/ low vitamin B12 and other vitamins, GERD, autoimmune dysfunction, resting/ attention tremors of unknown origin. I agree with old Ted as I feel it’s related to low glucose, I’m not diabetic, but it also seems to happen more when I feel generally unwell. I’m being investigated for mast cell problems, so this could also be involved. 🤷‍♀️🤷‍♀️🤷‍♀️

It’s a bit complicated 😬😬😬

[StriatedCaracara in reply to MEGS53]

Thanks Meg, I'm getting the tremble at the moment.

I think it is because I had to go shopping this morning, and it is that going to and fro through the sunny car park ...and all the heavy bags. I shopped for another person too..I'm a carer.

Think I went too far. I also wonder if sometimes strong light going my eyes, might trigger it.

Then I got hungry too, been trying to eat eat lots of 'anti-inflammatory' salad.

Going to have some carb, and see if I feel any better..

Mystery.

Rheumy did confirm it was one of the things that it happened..

Didn't ask why though.

Big piece of cake did help. So although various things not feeling right sugar was needed..

Thanks

[MEGS53 in reply to StriatedCaracara]

hi

Hope you’re feeling a bit better today SR. It is scary when it happens, a chunk of carbs also makes me feel better and puts the trembles away for a while. And I don’t think it’s psychological 😬😬😬

Perhaps you’ve been doing a bit too much recently, particularly as you’ve had covid? Be kind and generous to yourself, difficult to do as a carer 😘

Take care 🤗🤗🤗

[KayHimm]

Internal tremors and buzzing sensations are common long covid symptoms. I have a friend undergoing tests at the moment. She also had heart palpitations and was put on propanol. The neurologist is doing a tilt table test, though he didn’t see other signs of autonomic dysfunction.

There was an article in the paper about this. It is really difficult for patients. One theory is inflammation in the nervous system post virus.

Hope you get an answer.

K

[Hidden]

Hi SC

Yes, you feel as if your insides are shaking and you can’t tell exactly where. Nothing visible outwardly. It’s mostly after being in the sun, worse when I’m exhausted, also it’s also worse prior to a period. I can’t state any research, sorry - not looked tbh. I’ve had Covid twice and I’ve autonomic dysfunction etc anyway which predates the infections (which I think Covid has made worse). Moderation helps, as I’m careful during times I’m I’ve noticed are triggers. Not found anything else in particular - still waiting for my appointment… This prob doesn’t help you, but yes, it’s a ‘thing’. ✨