Restless leg syndrome : Morning Happy May Day. I... - LUPUS UK

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Restless leg syndrome

JCZW profile image
JCZW
27 Replies

Morning Happy May Day. I was wondering if anyone has any ideas about how to cope with restless leg syndrome.

It's driving me mad, at least 2 hours per leg about 3 times a week.

I'm very reluctant to take prescription drugs for it.

Any advice would help.

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JCZW profile image
JCZW
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27 Replies
PMRpro profile image
PMRpro

Some people find taking magnesium supplements helps.

JCZW profile image
JCZW in reply toPMRpro

Thank you, that maybe a way forward.

Tiggywoos profile image
Tiggywoos

Hi lovely . I literally French my legs in BetterYou magnesium spray for sensitive skin . I do about 10 sprays on each leg (I apply it with disposable gloves as if can make you hands sting ). It does work but I think the trick is to spray them before they get restless if that makes sense .

Mine are always bad when I sit down to watch some TV or car journey or in bed .

When was your ferritin last checked ? I often find when the levels drop the legs get worse .

Happy May Day 🌷

JCZW profile image
JCZW in reply toTiggywoos

Thank you for your response. I think I will have to check with my gp regarding the ferritin levels.

I had my bloods done last week and saw the rheumatologist at the hospital who said my bloods were 'ok'.

He suggested prescription drugs for my legs but I think sometimes they are to quick to dish out medication.

I am suffering with stress at the moment and my blood pressure is high and being monitored by the gp so I don't suppose that helps.

I like the idea about using the magnesium spray.

Xx

Tiggywoos profile image
Tiggywoos in reply toJCZW

really annoys me that when they say “bloods are ok” because yours could have dropped and you may be on “low side of normal “ . Definitely get a copy of bloods from GP because it is worth checking the ferritin levels and magnesium (if they ran that test ) .

I’m exactly same as you don’t really want loads of drugs especially when don’t know the cause of problem is . Hope this isn’t too much info but I do get awful constipation and I find the magnesium spray helps a little with that too . It also can help to relax you which would might help if you are feeling stressed .

Take care my lovely and be kind to yourself 😊 xx

JCZW profile image
JCZW in reply toTiggywoos

Thank you so much Tiggywoos for your kind words.Lots of hugs 🤗 xx

Tiggywoos profile image
Tiggywoos in reply toJCZW

so sorry meant drench not French my legs 🤭 . Hope it made you smile a bit xx

Tiggywoos profile image
Tiggywoos

boots.com/tisserand-restore...

I bought this for my friend yesterday and it smelt amazing which I’d bought on too 🙂

sarahsch profile image
sarahsch

Hi. There are stretching exercises for restless legs which might be worth a try.

You can search for them online, but the one that worked for me was to sit upright in bed with the legs out Infront of you, toes pointing towards the ceiling. Then tense the lower part of the leg & try to lift your heel off the mattress whilst keeping the back of your knees against it. Hold this for a few seconds & repeat a few times.

Hope this gives you some relief.

Sarah x

JCZW profile image
JCZW in reply tosarahsch

Thank you so much for your response, it's certainly worth a try . X

Olderkitten profile image
Olderkitten

I've had rls for what feels like forever and it got to the point that if I didn't get help for it I would lose my mind. The Neurologist that I was going had me on Ropinerol and it worked for a while but it needed to be stronger and as my would have it he sold his practice so I had to find a new Neurologist and I did. It was like night and day and the best thing that happened to me because she's amazing, she put me on 2 different doses so it is a lot but for the first time in years I can sit still and sleep without it waking me up and it's wonderful! I know you said you would like it to be drug free and I know there are Dr's who teach you to move, I personally don't know how it works or if it works but I think it's a Neurologist you have to see, ask your primary Dr for a referral. Good luck!

Olderkitten profile image
Olderkitten in reply toOlderkitten

And I didn't tell you the name of medication...Carbadopa Levadopa

JCZW profile image
JCZW in reply toOlderkitten

Thank you for your advice. It helps to understand what other people endure with this condition.

Halfwayuphill profile image
Halfwayuphill

I’ve had RLS for years too and was prescribed a drug by my rheumatologist. I didn’t want to take it as you had to every day but I may have to one day. I’m not sure I cope totally with it but I use magnesium spray (doesn’t always work in my case) and have a regime before I go to bed. I walk around the garden every night ( this also is for my gastroparisis), warm my lower legs by having a hot bath, have an electric blanket and when I go to sleep a hot water bottle between my knees - not too hot though. My RLS is definitely related to my Raynaud’s and also if I’m constipated. I don’t read before I go to sleep for more than a couple of minutes as the longer I’m in one position (bed) awake the more likely I am to get an attack. The trick is I find is to get to sleep very quickly once I’m in still and in bed. At times it wakes me and I walk downstairs, try legs in air and take paracetamol. If early enough half or piece of Zoplidom. Sometimes if I know I’m going to have a difficult night (pain etc). I take paracetamol and half a zoplidom before bed. Things that make it worse are days sitting (cars, lectures etc), dinner at friends (I also walk after dinner at home!). I don’t mind too much if the evenings are bad but hardly ever sit in a chair relaxing! I’m a constant jiggler. Also we have a dog so get a walk in a day. All this moving helps my digestion too.

Hope you find a way to deal with it. I’m sure everyone is different and I’m lucky I don’t get it all the time. I seem to go through phases.

JCZW profile image
JCZW in reply toHalfwayuphill

Many thanks for your reply. I also have Raynaulds, my feet and lower legs are extremely cold most of the time. I use a hot water bottle at night to help.I will certainly give the magnesium spray a go.

0936725 profile image
0936725

nutriadvanced.co.uk/megamag...

Stops restless leg twitches, as advised by my nutritionist, it works fast and throughout the night. Various options to choose from on their website, I have the range: energy, menopause, nighttime calm. All fabulous. Quality product.

(I am in no way affiliated with Nutri Advanced and do not benefit personally recommending their products)

JCZW profile image
JCZW in reply to0936725

Thank you for your response it's worth giving it a try.

0936725 profile image
0936725 in reply toJCZW

I love the cherry flavour but all are good, I add an effervescent vit.C to a pint of water too and it’s delicious, great way to drink more fluids.

All Nutri products are good, I find their nutritionist very helpful when I request a call back.

Aurali profile image
Aurali

Hi JCZWI used to get this every night!

I now take magnesium every day and I don't get it at all 😊

JCZW profile image
JCZW in reply toAurali

Thank you Aurali It seems that magnesium is the key issue. I will certainly try it.

0936725 profile image
0936725 in reply toJCZW

Magnesium comes in many forms; citrate/glycinate/chelate/bisglycinate/malate etc… In my years of experience, If a product seems cheap it might not be the right form that works well.

PMRpro profile image
PMRpro in reply to0936725

On the other hand - it may well be the cheapest works just as well for you as the most expensove.

lowraind profile image
lowraind

I use cbd creams. There are many out there, so you have to try til you get one that works for you.

JCZW profile image
JCZW in reply tolowraind

Thank you for your response. Will definitely look into it.

CavendishCool profile image
CavendishCool

My restless leg syndrome turned out to be osteoarthritis in the hip and knee. Happy Tuesday 😊

CavendishCool profile image
CavendishCool

My restless leg syndrome turned out to be osteoarthritis in the hip and knee. Happy Tuesday 😊

JCZW profile image
JCZW in reply toCavendishCool

Hi CavendishCoolThat's very interesting because I also have osteoarthritis in the hips and knees.

Happy Tuesday to you

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