Spf and Uvf clothing

[Butt3rf1y]

Is it necessary to always wear sun protective and ultra light protective clothing if you suffer from lupus?🥺🦋

[Spanielmadlady]

Yes.factor 50 ,hat,sunglasses ,cover up head to toe and stay out of the sun as much as possible. If i don't I get a migraine , more fatigue and my joints flare.uv also comes through windows and from light bulbs. Some meds add to the photosensitivity that comes with lupus x

[Butt3rf1y in reply to Spanielmadlady]

Where can you get the best protective clothing from?

[Spanielmadlady in reply to Butt3rf1y]

Others maybe able to help you better then me on that score.i wear a factor 50 hat from solbari,wrap around sunglasses and use aldi factor 50 sensitive suncream. X

[Butt3rf1y in reply to Spanielmadlady]

Ok thanks 💕🦋❤️🧡💛💚💙💜

[Barbara17 in reply to Butt3rf1y]

I agree with SML. Solbari spf 50 clothing from Australia is great. As to sunscreen I don’t take it on prescription as the stuff the nhs prescribes is thick and greasy. I like the Avon one but everyone is different

[Mifford in reply to Butt3rf1y]

have a look at Uniqlo and search uv fit clothing. It’s generally long sleeved tops or lightweight zip up hoodies it easy to combine with other clothing and significantly cheaper than specialised shops. Also look at a wash in powder called Rit Sun Guard - this will add uv protection to your own clothing. There is a uk site selling it at £4.99 a box. Shipping is slightly high but I’ve just ordered 4 which I add to one load a week and find that covers pretty much all my clothes for the summer and I do the same again for the winter. Works out much cheaper than buying special clothing and means I can wear normal clothing with the confidence of added protection

[Butt3rf1y in reply to Mifford]

So if you layer up UV clothing with normal clothing will it still give you the protection you need?🤔🦋

[Kell12]

hi it depends how badly the sun effects you I wear factor 50 (soltan) as my skin is sensitive in the sun but I don’t need to cover up all the time.

[Guatmom]

The sun is my enemy. A very slight sunburn on my legs caused a major flare with a large pleural effusion. The only thing good about it was I finally received a definitive diagnosis. Year round I wear long sleeves and long pants, and if in sun a hat. SPF clothing is getting easier and less expensive to find.

[Krazykat26]

I'm very photosensitive and I can't wear sun screen so I use protective clothing. I search on Amazon n I've got some great long sleeved tops n leggings,hats and recently some UV fingerless gloves. It can be an expensive buisness but I've found that I can get bits n pieces and build it up over time. It makes me giggle to know I'm wearing a rash vest which is a long sleeved top that I can play volleyball in..then I can go surfing n get it wet..it will dry really quickly!! 😹 There's absolutely no way I'd go to a beach but it's good to know 😹

[KayHimm in reply to Krazykat26]

KK - just noticed you mentioned not being able to wear sunscreen. That eliminates one effective defense. Can I ask why?

I had a problem with sunscreen that was just hoping I could help my friend across the pond.

💕🌸🌹

Kay

[Krazykat26 in reply to KayHimm]

Hey girl 🤗It brings me out in a rash!! It feels horrible on my skin n then later I come up in little spot type rash. My official diagnosis is Subacute cutaneous lupus so I have to be very careful what I put on my skin. For instance I can't use soap n have to use Dermol 500 lotion as a soap substitute. However I've found that protective clothing is a good alternative. When I was using sunscreen I had a brand that my husband bought which was thick n gloopy. Then I read on here about mineral sunscreen so I invested in sunsense but even that caused a skin reaction. That's when I decided to invest in UV clothing which does the job for me n I suppose it works out cheaper in the long run. I do use sunsense lipbalm n that's fine..it's just my blooming skin!! 😹

Hope all is well as can be across that there pond Kay 💜🌈xx

[KayHimm in reply to Krazykat26]

Well, that is what I was wondering. I started reacting to sunscreen when I went into the sun - no fever or nausea - and the rash turned out to be photo allergy. I knew it was different from the usual sun reaction. The dermatologist I had seen for a biopsy turned out to focus on cancer and connective tissue disease. She explained that many lupus patients have photo allergy to the chemical sunscreens. My other dermatologist and rheumatologist did not know this but seemed glad to know.

You really are super sensitive in ever way. Has to be hard. You always meet these challenges. 🤺

How are you feeling?

😘😘

[Krazykat26 in reply to KayHimm]

Oh wow!! So it is an actual thing then? That's very helpful...Thank you 🙏I'm ok thank you..I'm a bit miffed at the moment coz we've had a problem with our boiler n were waiting to have it repaired. We've had no running hot water for over two weeks!! 😹 Luckily we don't need the heating coz it's been very hot here recently.

Lovely to hear from you..take care 🤗💜🌈xx

[KayHimm in reply to Krazykat26]

It is a thing, yes. But usually the photo allergy is with chemical sunscreens. You have very sensitive skin and are probably reacting to a lot.

I am trying to find a lip sunscreen that doesn’t taste like something scary. My mineral one is too awful! Ordered a new one ☝️.

Take care, KK.

😘😘

[Krazykat26 in reply to KayHimm]

Sunsense is ok on the lips..no nasty taste n it gives a lovely pink sheen 👍💜🌈xx

[KayHimm in reply to Krazykat26]

Thank you! Will try it. 💄

[Bake34]

I always do summer and winter

[Khakha12]

Not really,it's a waste of money. Besides we need a bit of free vitaminD( not from the bottle)