Hello, i recently got diagnosed with Lupus but for the past couple of years i have had problems with breathlessness and feeling faint. I always feel like i am going to faint. I am pretty sedentary, I became paralysed a couple of years ago and although i can now walk, i dont have alot of energy so i dont do much.
So my question is breathlessness and feeling faint common symptoms of lupus? and is this something i am stuck with forever?
Any answers would be greatly appreciated.
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Springmilli
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Thanks for the advice. I had never considered pots before but i seem to match a few of the symptoms. I have a meeting with my rheumatologist tomorrow so i will bring it up.
I have low blood pressure most of the time, they’ve said they can’t do anything about it, and that sometimes makes me feel faint, especially if I’m fighting something else like a virus, cough or cold. Have you had your blood pressure checked?
Hope you get some answers about it soon. It’s so hard to know what Lupus and what isn’t x
If I were you I will try to avoid gluten, dairy, sugar and processed or glyphosate and other pesticides in foods for three months and check how you feel. Then reintroduce one by one slowly and check how you feel.
Eat as organically as possible, get some exercise/walks, sleep at least 8 hours a day, avoid stress if possible or try to manage it, and add probiotics (YourGut+ is working for me), vitamins and minerals to your diet.
Lyme, parasites, heavy metals, mold, chemical toxins exposure could be another issue too.
In my opinion, something is making express our epigenetic: affecting our gut microbiome, creating permeability that affects our brain and nervous system deregulating everything and producing innumerable symptoms.
We should know the root cause to address it properly before there is a lot of damage and only meds can help. I guess/hope in the future it will be possible in functional medicine.
Probably a good idea to check lung function and find out if lupus is attacking your lungs. Are you having a low blood pressure? If yes there are things you can do to manage it.
I was breathless when I got diagnosed with lupus and the rheumatologists said it wasn't lupus related, it was eventually diagnosed as asthma after it got worse.
What meds are you taking? I get low blood pressure because methotrexate lowers my sodium levels. I drink a salt and lemon drink when I get up now and it helps.
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