Have had my covid vaccine and all ok so far..

[Sara_A]

Hi everyone just to let u know I've had my vaccine last night I'm 41 and had it as I work in the nhs primary care but I've been off since March as it's not safe for me to be in work so I'm working from home.

I was obviously apprehensive even though I'm a nurse we still worry as it's a new thing and with having lupus and APS I know what my body sometimes does with these things! So I was a bit concerned that I was going to be unwell like I often am after the flu vaccine (every yr apart from this yr! This flu yr has been the best one for me no hot red lump on my arm and not bedridden for 3 days stiff and feeling rubbish)

So I was expecting to feel like that but it has only been 20 hrs since the vaccine so I might be a bit premature yet!

It was fine having it done tho, just like having the flu vaccine or any other injection, all the over 80s there were all fine too and I've spoken to a few of my patients today who had it and they all feel good so no problems.

Hopefully this will give u all a bit of insight and help u not to be worried when it comes to having it if u chose to have it of course x

[Spanielmadlady]

Glad it's gone well for you 🤞 it continues that way. I take my 88 year old mum for hers on sunday 🙌. With a pinch of salt and tongue in cheek I tried the covid vaccine calculator ....I'm due mine in the first 3 weeks of feb. ..be interesting to see how that pans out 🤔. Wishing a peaceful Christmas Sara xx

[chrisj in reply to Spanielmadlady]

Just used that calculator. Mines due from the end of january to the end of feb, some time with in that month.

[Spanielmadlady in reply to chrisj]

Be interesting to see how accurate it is wont it x

[chrisj in reply to Spanielmadlady]

Yes thats what I thought 🙂

[suzannah16]

hi, glad you have no ill effects from the jab. I was wondering if as we lupies have auto immune problems will they check us to see if we get anti bodies from the jab? I know they don't check when we have flu etc but then they have had that jab around long enough to know if it helps us. I'm worried they and we will assume we are ok but that the vaccine hasn't done anything.

[Sara_A in reply to suzannah16]

We wont get the full immune response but theres nothing that can be done about that and no I doubt they will check anybody's immune response to it. We dont get full protection from the flu either so we just have to hope we get enough, this is predominantly only if u are immunosuppressed I would say x

[Spanielmadlady in reply to Sara_A]

I'm immunosuppressed and had read we must stick to restrictions as we may not develop a response but having said that future vaccines may suit us better and providing there arnt to many anti vax muppets around if the vast majority have the vaccine its will still help us enormously

[PMRpro]

Thank you - I will refer any worried members from PMRGCAuk to your post!!!

[KayHimm]

Great!! So glad it went well. Keep us posted.

[Sara_A]

Wow I cant believe how many people have already responded to this post! That's amazing I'm do glad that you all feel positive from my little post! Ps I'm still ok ha! Thought I was feeling a bit warm earlier but it's fine I'm ok.

Oh I was also worried yesterday as I'd done my methotrexate injection in the morning and I didn't find out til the afternoon about the covid vaccine cos work contacted me to say could I go that evening so I was a bit concerned as it was after I'd just had my dose but It shouldn't really matter! X

[Bobbydoodle]

Ah that’s good to hear that you are doing well after the vaccine.

I also have APS and Lupus. I only take Hydroxychloroquine and Warfarin though so I’m less risk so it will be a while before I’m offered the vaccine but I have to say that although I’m not anti vaccine I am/was worried so it’s good to hear someone’s experience with autoimmune.

Take care and I hope this means you can soon get your life back to some normality

[Horsewhisper]

Well done you for going for it, not surprised you felt apprehensive about and I do hope you continue to feel well. Keep us posted, most interested to hear how you get on! 😘

[chrisj]

I just hope the wait is not too long. I'm 74 with kidney disease and asthma, fingers crossed its sooner rather than later. Glad all is good so far with you and thank you xxxx

[Sara_A in reply to chrisj]

It shouldn't be too long now for you just hang in there with staying safe, u are on the home stretch now to getting the vaccine!

[chrisj in reply to Sara_A]

Thank you Sara. I will 🙂

[BonnyB]

Very pleased to hear you are doing well, great news X

[Sara_A in reply to BonnyB]

Thanku and yes I still feel good, is that a cockapoo u have??! I have too Ted on my pic 20 months x

[BonnyB in reply to Sara_A]

I'd noticed, he's a handsome boy! Yes, she's 7 yes and my little darling X

[Meg52]

So glad it went well for you. Thank you for posting, the more we know the better! xx

[Krazykat26]

Thank u sooo much Sara for posting about the vaccine n letting us know how u r 🤗I'm glad to hear that you're doing fine..it's really reassuring to know that. Well done 🌈😽😽xx

[Sara_A]

Just another update for u all and thanku for everyone's responses its been lovely to hear from so many people! I'm still doing fine no problems at all, I had a sore arm for about 2 days but so did everyone else who had it but nothing like I do when I have had the flu vaccine normally that bumps up and is inflamed and on fire for several days but this wasnt at all.

I've had no issues and I was a bit worried as I had it on the same day I injected my 20mgs of methotrexate too and I'm on 10mgs prednisolone daily too.

So all good and waiting for my 2nd dose now on 6th jan.

I'm glad that its been able to help with any worries any of u may have had which is the reason I wanted to post x

Have a lovely Christmas everyone and remember to stay safe and dont mix with other people despite what the gov say, the virus isn't going away for 2 or 5 days so we can 'party'!!

I don't want to just visit my parents for those 2 days I wants to visit them for yrs to come! Xxx

[Nickymck]

That's great. Hopefully this is the start of the end of Covid 19.

[mimiof9]

Hi Sara_A!

I'm being forced to get a vaccine or lose my job. I've been in a CFS cycle for the past 3 months. I'm so afraid having SLE Lupus, Fibromyalgia, and Hypothyroid issues that if I take the vaccine it will absolutely knock the wind out of the little sail I have. Please keep me posted if you do have a delayed response from the jab. Btw, which vaccine did you receive?

Thanks! Best wishes to you.

[Paul_Howard Partner LUPUS UK in reply to mimiof9]

Hi mimiof9 ,

There have been a few studies now which have investigated how people with lupus react to the COVID-19 vaccines. They have found no difference in the type, frequency or severity of side-effects based on the type of vaccine.

Most recently, I saw that 11% of patients reported some degree of flare after the COVID-19 vaccine. 1% of patients were reported to have a "severe flare" which required an adjustment of their lupus treatment.

Most people with lupus manage very well with the vaccine. It is recommended to have it because the risks of COVID-19 infection significantly outweigh the risks of vaccination.

[mimiof9 in reply to Paul_Howard]

Thanks for responding Paul_Howard. I think I know what is causing the excessive heart palpitations along with the fatigue I've been experiencing. I get like this when my ferritin and or hemoglobin runs low. I called my doctors office to schedule a lab appointment.