Bath Hospital

[Wrexlu]

I was wondering if any of you have been to Bath hospital and how you got on. Lupus has only showed up once in my blood in 2007 but I continue to have problems. My joints are really sore and I have been having quite a hard time. Considering getting a referral here do you think they would take my case on? Going to see my GP on Thursday and will ask him then.

I would just like to know have any of you been there and what was your experience like.

[eescvc]

Hey - I live in bath so the RNHRD is my local specialist hospital. I've only been 4 times myself but they seem pleasant and professional enough. I wouldn't know what to compare to though honestly!

[maybehope]

I went to Bath in December to get a second opinion on my treatment here in Cornwall. I was referred by my doctor after telling him i wanted to see a Specialist in Lupus, They were very thorough and agreed with my consultant with a few suggestions as well. I would say go for it as it gives you piece of mind if nothing else!

[Wrexlu in reply to maybehope]

Thank you

[lupie46 in reply to maybehope]

Me too! Treliske to Bath to get SLE confirmed!

[Pickzie]

I was rested at bath for 10 years and found them v good. My local health board has now repatriated my care back to a local service that has since developed so my last visit to bath was several years ago. Interestingly my new consultant did her rheumatology training there

[Pickzie in reply to Pickzie]

I meant treated not rested!

[Fennella02]

I recently went to an information Day there and was very impressed. It’s very professional compared with the slapdash approach of my local Rheumatology dept. Most local RA & SLE friends of mine travel the 60+ miles to go there rather than attend locally.

I would get the referral if you can, you won’t regret it.

[Wrexlu in reply to Fennella02]

Going to ask my GP on Thursday. Thank you for your reply.

[Wendy39]

Hello

I would say go for it. what have you got to lose? Bath is a Lupus Centre of Excellence, so should be able to give you the answers you need.

Good luck.

Wendy

[Wrexlu in reply to Wendy39]

I just hope my GP agrees. Fingers crossed.

[Wendy39 in reply to Wrexlu]

Please let us know how it goes. x

[Wrexlu in reply to Wendy39]

I saw my GP and he has done some blood tests and an X ray of my hands. He is waiting for them to come back then will refer me. So relieved. He also gave me naproxen for my joints.

[Wendy39 in reply to Wrexlu]

Great. Let’s hope he does that referral for you.

[lupie46]

I went to confirm diagnosis. The Professor was a bit curt, but thorough. Everyone else was lovely. I got confirmation of SLE. Good luck!

[Poshcards]

I have been an outpatient at The MIn at Bath for over 25 years now with my SLE and an inpatient once. They have been awarded an Excellence in Lupus award for their dedicated care in this disease. I have now moved up to the Midlands but still travel back down to there every 6 months or so for my appointments. Always been treated with the utmost care. Hope this helps you decide xx

[loopyloopy]

Thats interesting what you said about lupus activity, I`ve had numerous blood tests , they say i`m not having flare ups, but why do i feel so weak and awful most of the time. I go to Addenbrookes i don`t find it helpful just feel like they cant be bothered anymore, my step mum says if your ill doesn`t always show up in our blood !!!!!!!!

[Wendy39 in reply to loopyloopy]

Your step mum is right, it doesn't always show up in your blood. A good lupus doctor should listen to their patients as well as the bloods etc. I know what's it's like not to be listened to or believed by your doctors. x